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Tag Archives: Grief

Is Trust an All or Nothing Proposition?

Counseling-theoriesI reiterated to my grief counselor last week that I trust God for my eternal future and I trust that God will walk me through anything He allows to transpire in my life but that I don’t currently trust Him with my heart.

Ruth responded, “But is that really trust at all?”

I cocked my head to the right and looked her in the eye and proceeded to relate a very poor analogy in support of my position. You see, I knew I believed that trust, like faith, grows over time in every personal relationship, but I wasn’t really prepared with an answer to support my conclusion.

When my daughters were young, on occasion they would be afraid to go to bed fearing that they would have a nightmare. My husband, David, is pretty much a creative genius. He thinks fast on his feet (unlike myself). His immediate response the first time our oldest daughter told him of her fear was to tell her that it would be impossible for her to have a bad dream that night because it was “Free Dream Night”. I stared at him incredulously thinking, ‘What’s going to happen if she actually has a nightmare tonight?’

Free Dream Night was a security blanket of sorts for my trusting young daughters and the entire concept bloomed over time as questions began to surface such as, ‘How do you know it’s Free Dream Night?’ (Stupid they were not, but gullible . . . well, they wanted to believe in Free Dream Nights). My very creative husband bamboozled his way into a highly complicated and mysterious formula regulating Free Dream Nights by the common calendar. This concept was obviously way over the tops of my young daughters’ heads, but then it was nothing more than a fictional tale woven by a master storyteller; or more accurately by a desperate and misguided dad.

broken-trust-and-anger-will-close-a-heart-until-honesty-and-love-is-once-again-found-nishan-panwarYou have to know the day eventually came where David was confronted by one of his daughters who’d actually had a nightmare on Free Dream Night. David managed to successfully pass it off as an error reading that very complicated calendar. Fortunately, none of our three daughters were plagued by nightmares, but had that happened, their trust in their dad would have been damaged.

All of us trust in people and things to a certain degree. Sometimes we are not even aware of the trust we automatically offer others until it has been breached. Anyone who has lived for any length of time quickly learns that not everyone is trustworthy, and it’s devastating when we find the people we trust most have let us down.

A parent spends countless hours nurturing, caring and providing for their children – all normal everyday activities that build trust within our children unintentionally. We don’t feed them when they are hungry to teach them to trust us. We feed them because we love them, because they are hungry and we know nutrition is important for their health. And our children inadvertently learn that they can trust their parent to feed them when they are hungry.

Yet, the best cared for child still doesn’t fully trust their parents when fear is along for the ride. Picture if you will a young child standing on the edge of a swimming pool, his dad in front of him in the water encouraging the child to jump. For the young dare devil, this is no big deal, but for the timid child, it’s not hard to see the child doesn’t quite trust that their dad will catch them.

trust-bank-3And sometimes, we break trust intentionally. We need that young child to be safe around water. We need them to learn to hold their breath, to kick and paddle their way to safety should they fall into a pool. So dad, after catching the child multiple times without letting their face go under water eventually lets his child’s head fall below the surface immediately pulling them back above water. The child learns that dad will still catch him, but he also learns he’s not as safe as he previously thought he was. Has the child lost all trust in his dad? No, he still knows his dad will feed him when he’s hungry but he isn’t as trusting the next time he stands on the edge of the pool and his dad beckons him to jump.

This is the nature of trust. We trust in degrees. We trust but verify either by asking questions or by taking risks. We start out small and take increasingly more daring risks as any given relationship grows. But we really don’t trust anyone completely – not even the Lord.

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Trust in the Lord with all thine heart is an encouragement as much as it is a command. But that “with all thine heart” part trips me up a bit. I concluded on my own that it meant to the full degree of trust you have within you, but I imagine the more literal interpretation would imply that if you don’t trust fully, completely, 100% in the Lord, you will forfeit the blessing of having God direct all your steps. So, I turned to a John Gill’s Exposition of the Bible for clarification on that portion of Proverbs 3:5. After fully expounding upon what it means to trust in the Lord, Gill turned his attention to that one small but important phrase, “with all thine heart”, and this is what Gill concluded:

 

” . . . this trust in Father, Son, and Spirit, should be “with all the heart”, cordial and sincere. The phrase denotes not so much the strength of faith as the sincerity of it; it signifies a faith unfeigned. . . “

 

High five! Gill and I agree; he just said it better.

So yadda, yadda, yadda, after reading my analogies and checking in with Gill, I have to say, trust is not an all or nothing proposition. We trust with all the sincere faith we have within and the Holy Spirit fills in the gaps and directs our steps.

What say you in regards to trust?

 
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Posted by on November 8, 2016 in Faith

 

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What Does it Mean to Suffer?

vodoodollI was recently shocked to hear a fellow grieving mother express that she had to explain to someone that the pain she was suffering was not treatable by the ingestion of a Tylenol or Advil. And that one comment flipped a switch in my mind.

You see, although my daughter, Gracen, has Muscular Dystrophy and suffers from migraine headaches, I don’t think of her as sick. I guess I define sickness as a temporary condition. One that prevents an individual from going to school or work. A bacterial or viral infection that results in fever, requires bed rest, leads to weakness, pain and digestive distress. A condition that requires hospitalization or chemotherapy and radiation. That’s how I’ve always defined illness.

But in truth, my daughter is sick. She’s been diagnosed with a degenerative disease. It is silently and destructively at work within her body while she attends school, goes to therapy appointments, hangs out with friends, etc. Just because her condition doesn’t keep her in bed 24 hours a day or require hospitalization doesn’t mean she is healthy. She is in fact very sick.

Our culture appears to live under the same misconception in regards to the way it defines suffering. We seem to  believe that suffering is not suffering unless it includes physical pain. Pain can be treated with medication, surgery, different forms of therapy and a myriad of other medical interventions. And although mental and emotional pain can be treated with pharmaceuticals, those interventions don’t eliminate the pain, they just enable the individual to better cope with the anxiety and depression that often stem from the heart and mind. Therefore, mental and emotional pain (and let’s not forget spiritual pain) is not perceived by society as pain at all and as such is excluded from the definition of suffering. Mental, emotional and spiritual pain have basically been redefined and reduced to nothing more than the practice of wallowing in self-pity.

From my personal perspective, mental, emotional and spiritual pain are better described as the bombardment of multiple feelings that coalesce into anguish and torment. Grief is definitely intense mental torment and emotional anguish. A lot of situations result in that kind of pain alone. Does the lack of physical pain mean an individual isn’t suffering? Does the Bible say that suffering is only physical in nature?

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We need only consider the example of Christ in the Garden of Gethsemane prior to His arrest to understand that biblical suffering includes mental, emotional and spiritual pain. In the garden, when Christ separated Himself from the disciples to pray, He literally sweat blood as He beseeched God to let the cup of His upcoming, arrest, betrayal, rejection, humiliation and fear of His impending beatings, crucifixion and separation from God to pass from Him. He was not in any physical pain at that point in time, but He was definitely suffering that dark night.

 

01afc9407cce38dbd431b2f53c8f6ba2It’s not unreasonable or hard to imagine that God the Father is also no stranger to suffering. Can you imagine the mental and emotional anguish God suffered as He denied His son’s request to have the cup of suffering pass from Him? How must He have felt knowing that His sinless, perfect son would take on the sins of the world and be separated from their intimate fellowship for the first time ever? How must He have felt knowing the excruciating pain that awaited His beloved son? He surely suffered as He watched as His son was arrested then abandoned and betrayed by His closest friends. It must have hurt to watch His son hit, spit on, taunted and mocked as He was passed from trial to trial throughout that long night.

christbeatenCan you imagine the torment as He watched as His son was whipped and struggle to carry His cross to Golgotha-His anguish as He looked on in horror as nails were driven through His son’s hands and feet, as He struggled to breathe hanging on that cross for hours and finally-finally hearing His one and only son cry out begging to know why He’d been forsaken by His father? Can you imagine the suffering? Could you willingly go through any of that with your child? God the Father was not Himself experiencing physical pain, but He was surely overwhelmed and tormented by suffocating anguish.

three-crossesNeither God the Father, nor Jesus Christ discount or belittle the anguish and torment that results from mental and emotional pain. They both experienced it. They both understand it at the most intimate level possible.

Feel free to gently remind the naysayers of that.

The sufferings of Christ included agony and torment far beyond physical pain and when we forget that, we minimize the extent of His suffering for our souls. We devalue His sacrifice. We make Him less instead of exalting Him to the extent He deserves. And we repeat that slight over and over again when we refuse to acknowledge that mental, emotional and spiritual distress is in fact suffering.

I would not wish for any bereaved parent to remain in that raw state of agony forever or even that bone deep ache that lingers as time marches on but your heart stands still in the quagmire of grief. And I don’t think we have to either. I believe we will always live with the awareness that someone of great value is missing from our presence. Their absence will always linger in our conscious and subconscious minds. Yet I also believe that God binds up and heals our wounds. His word tells us that is so. We live with the scars, but the intense minute by minute pain recedes like waves hitting the shoreline. The tide continues to rush in with birthdays, loss anniversaries, family gatherings and celebrations and other unanticipated events that trigger intense feelings of sorrow and loss. But the tide will then recede allowing us to catch our breath, to relish memories of living life together, to rest in the hope of reunion, and to enjoy the good things and people that still surround us. I experienced it after the death of my son 24 years ago. I know it can happen for me again as the Holy Spirit does His work in my heart. He can work that miracle (could any loss parent describe it as anything else?) in the hearts of every broken believer too.

wrestling-with-god-intimacy-webI think healthy grieving involves wrestling with God. As much as it is in your power to do so, ignore those who are blessedly ignorant and foolishly judgmental. Wrestle well with God. Don’t exclude Him from the process. Contend with Him! He is strong and loving and faithful and He grieves with us and for our broken hearts. He doesn’t condemn us for our anger and sorrow, instead He pulls up a chair and sits with us through it longing to draw us into His arms to comfort us. One day, I hope every broken believer finds themselves there, in His waiting arms, sobbing out their anguish and frustration and when the tears and shuddering gasps of sorrow release then I hope they will find their hearts to be safe in His care. That’s my hope for myself, for every bereaved parent, for every hurting Christian, for every lost soul struggling to put one foot in front of the other day in and day out after their cherished plans have been swept away.

 
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Posted by on October 26, 2016 in Faith, Grief

 

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Down the Damascus Road, Again . . .

damascusroadI have found there are points in my life where I find myself completely unable to accept God’s obvious plan. Maybe you’ve found yourself in a similar situation? It’s what I refer to as my “Road to Damascus” experience. By that point in time I’m filled with frustration and anxiety and doing everything I can in my own power to change the circumstances I find myself in only to have God pull me up short and shine a painful, blindingly bright light of truth down, revealing that I am not just kicking against the pricks but actively working against His greater plan.

It’s hard to describe how it feels to know that the thing you least want to accept in your life is an irrefutable part of God’s plan. Oh, to be a two-year-old again so that the temper tantrum I want more than anything to throw, while not tolerated, is at least understood.

Harder still and completely beyond my human capabilities, is the ability to change the desperate desire of my heart, let alone make any attempt to surrender and embrace God’s unacceptable plan.

I firmly believe changing the heart and embracing God’s plan only happens at the point where a believer’s brokenness is met by the active work of the Holy Spirit in that believer’s life. Surrender definitely comes before embracing the plan.

In fact, embracing the plan may never actually happen and it may not even be something God expects from me — from any believer. Maybe all God really expects is for us to quit actively working against Him — not because we have the power to prevent His plan from unfolding but because the fight — the anger, fear, frustration, anxiety and bitterness exhausts and destroys us from within.

Maybe simple resignation, surrender to the inevitable, is a victory in and of itself. Maybe surrender, resigned or not, allows one the energy to take the next step, endure the next blow, and the next, until only the sorrow and quiet emptiness remain leaving room for the Savior to fill you from the cup of consolation and enabling the broken believer to receive the only remaining hope worth clinging to — an eternal future promised to stand in stark contrast to every aching moment the present reality reflects. Maybe that’s sufficient until the day we are made like Him.

 
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Posted by on October 1, 2016 in Adversity, Faith, Grief

 

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Silence Doesn’t Serve Anyone Well

Silence Doesn’t Serve Anyone Well

thelifeididntchoose

One of the reasons I write is to share my grief experience with others.

I realized when tossed into the ocean of sorrow that of all the things I had heard about or read about, surviving child loss was never mentioned.  

Oh, someone might comment that so-and-so had LOST a child, but then the conversation quickly moved on to more comfortable topics.

But if we don’t talk about it, we can’t learn to live through it.

Silence doesn’t serve anyone well.

I agree with Mr. Rogers:

Anything that’s human is mentionable, and anything that is mentionable can be more manageable. When we can talk about our feelings, they become less overwhelming, less upsetting, and less scary. The people we trust with that important talk can help us know that we are not alone.”
― Fred Rogers

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During the course of my lifetime I have seen many topics dragged from…

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Posted by on June 24, 2016 in Faith, Grief

 

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Fixing Me – flannelgraphs

 

This post from Flannelgraphs reminds me of an old Roberta Flack song, “Killing Me Softly with His Song”. Below are the lyrics and a link to the original soundtrack from 1973 on YouTube.

“Killing Me Softly With His Song”

[Chorus]

Strumming my pain with his fingers
Singing my life with his words
Killing me softly with his song
Killing me softly with his song
Telling my whole life with his words
Killing me softly with his song

I heard he sang a good song
I heard he had a style
And so I came to see him
To listen for a while
And there he was this young boy
A stranger to my eyes

[Chorus]

I felt all flushed with fever
Embarassed by the crowd
I felt he found my letters
And read each one out loud
I prayed that he would finish
But he just kept right on

[Chorus]

He sang as if he knew me
In all my dark despair
And then he looked right through me
As if I wasn’t there
And he just kept on singing
Singing clear and strong

Strumming my pain with his fingers
Singing my life with his words
Killing me softly with his song
Killing me softly with his song
Telling my whole life with his words
Killing me softly with his song

 

Don’t skip the video — the lyrics alone don’t do the song justice and Ms. Flack sings it so beautifully!  “Killing Me Softly With His Song”.

Not all the lyrics express my feelings, but the idea that a stranger could so clearly speak the heart of another certainly fits.

Caitlin, the author of “Fixing Me”, shares her heart, story and faith with humility and eloquence. A teaser for the article follows.  I hope you will take the time to click on the link highlighted in red below!

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“What do you do when you’re angry with the Creator of the universe and the Lover of your soul?  When you’re incredibly disappointed in your Redeemer and feel as though He can’t be trusted with the things, the people you treasure most?  What does a professing believer do with that depth of confusion and spiritual chaos? . . .”

Source: Fixing Me – flannelgraphs – Dealing with faith and finding healing in the depths of loss.

 
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Posted by on March 18, 2016 in Faith, Grief, Links, Music

 

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Perspective

Another great post from The Life I Didn’t Choose (thelifeididntchoose.com).  The author, a bereaved parent, addresses issues of value to every committed follower of Christ.

 

For our momentary, light distress [this passing trouble] is producing for us an eternal weight of glory [a fullness] beyond all measure [surpassing all comparisons, a transcendent splendor and an e…

(Clink on the link highlighted in red below to read the complete article.)  

Source: Perspective – thelifeididntchoose

 
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Posted by on March 5, 2016 in Adversity, Faith, Grief, Links

 

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Welcome to Paranoia!

(Originally published on Facebook 11/17/14)

letter-to-mePlease take a moment and read this blog post from themighty.com, entitled, “A Letter to the Me Who Was Terrified of Our Diagnosis”, before reading any further. (Link highlighted in red below)

A Letter to the Me Who Was Terrified of Our Diagnosis

Oh yeah! I wish I had read this in the early years, when I knew something was wrong but most people (medical professionals included) thought I was simply a paranoid, over-protective mother.

I never could have written this to myself. The many comments that minimized Gracen and Katie’s symptoms from real concerns to simple clumsiness left me second guessing myself. Having lost one child, I was hyper-sensitive to every fear, but also hyper-sensitive to over-reaction. I knew I needed to guard against my over-protective nature, yet that left me consumed with self-doubt. I was not able to see clearly. I needed someone with a more distant perspective than I could manage to encourage me to aggressively pursue answers. It took me quite awhile to find that person.

In the meantime, I developed an advance/retreat strategy. Push, push, push for answers. Gain a bit of knowledge, a fraction of ground. Push for more information. Get shot down and become disheartened. Retreat. Bury my head in the sand. Shake off concerns – ignore fears, ignore fears, ignore fears! Arggggg, can’t ignore my fears anymore – push, push, push! Repeat!

That describes the early years. Every once in a while God would send a glimpse of encouragement. I remember taking Gracen to soccer practice one afternoon, frustrated that a doctor had once again downplayed my concerns, leaving me questioning. Wondering if I was seeing something that didn’t exist. I sat down next to another mother I didn’t really know as practice began. A few minutes after practice started she turned to me and said, “What’s wrong with your daughter?” And while I cringe at the insensitive way in which the question was phrased, at that moment I was thankful because she validated what I knew to be true deep down inside and gave me the courage to push some more.

There came a time when, due to the progressive nature of the girls’ disease, I no longer had to fight to have doctors acknowledge a problem existed. However, at this point I encountered an unexpected attitude from medical professionals. There is a school of thought within the medical community that promotes the idea that the root of the problem is irrelevant. Treating the symptoms is sufficient. Weary of the battle, worried about the future and afraid to look too closely into the future, I acquiesced.

Then one day, having to find yet another neurologist, I stumbled upon Dr. Phillips, a new pediatric neurologist had arrived in NW Arkansas (actually, I think she was the only “pediatric” neurologist in the area at that time). She was a tiny sprite of a thing with a warrior’s heart. After several appointments she turned to me one day and said, “I think we need to search for a diagnosis. You need to know if a condition leads to other medical issues so that we can watch for those and not be surprised by them.” So the hunt was on — and it took years.

Dr. Phillips eventually married a fellow neurologist, and became Dr. Balmakund. When her husband began working at the same clinic, Dr. Balmakund became known as Dr. Mrs. Balmakund. She is the most humble and tenacious doctor I have ever met. She is always open to suggestions from others; medical professional or not. She loves her patients and their families. She takes her undiagnosed cases to monthly conference calls with her peers and to medical conferences where she questions other specialists; always seeking to find another patient presenting with similar symptoms or to find that one specialist who has knowledge of a condition she is unfamiliar with. She has no ego where kids are concerned. She willingly sent us to other specialists and eventually one, who himself, was unable to provide a diagnosis, did suggest two tests that might reveal one. After jumping through a series of insurance hoops, a full fifteen years after Gracen’s symptoms presented, we finally had a diagnosis.

Yipee, right?

Wrong!

David and I found ourselves less than prepared to hear the prognosis revealed one Spring morning at her clinic. However, Dr. Balmakund did not abandon us but set us up with a neuropsychologist to help us work through our fears and concerns and to guide us in the best way to inform all three of our daughters of the less than desirable diagnosis we’d received. Dr. B, as she is affectionately known to many of her patients, has been there for us every step of the way — has gone above and beyond with hospital visits and follow-up phone calls. She has been a gift from God and we could not be more grateful.

In fact, God has been doubly good to us as Amy Grant used to sing. Dr. Mrs. Balmakund works in a practice of like-minded professionals who have supported and encouraged us in our most difficult and darkest moments. They have shared hard truths with love and have pushed us to seek outside help we likely would have made do without. We have needed them and they’ve simply stepped up and in.

Drs. Karkos, Scott and Balmakund have done for me what the woman in this article did for herself. They have ministered to our entire family, not just their patient. In that, they are truly remarkable and have blessed us beyond measure! They are among those I think of when I hear or think of Philippians 1:3, “I thank my God upon every remembrance of you.”

These women are but a small sampling of the men and women God has surrounded and supported us with. So very many people, some who’ve played limited roles, appearing at just the right moment, and some who’ve stood in the gap for a season, and many who have walked alongside us for years — serving as the hands and feet of Christ with a word of encouragement, extending simple kindness, or doing the heavy lifting by praying us through concerns, challenges and downright dilemmas. Oh yes, I am grateful to God for His faithful provision.

Now, I think I should go back and read paragraph one!

 

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God of the Day and God of the Night

This article was originally published on The Life I Didn’t Choose. Everyone will eventually experience times of darkness in life. Regardless of the cause, this post has value for every believer.

I was afraid of the dark until I was almost forty years old. My fear was rooted in scary childhood moments and even years of adult experience could not rip it from the soil of my psyche. I never co…

(Link highlighted in red below.)

Source: God of the Day and God of the Night

 
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Posted by on March 3, 2016 in Adversity, Faith, Links

 

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Breakdown & The Calm After the Storm

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Why a glimpse behind the curtain to the deeply personal and hidden grief of a bereaved parent? Not to inspire your pity; of that I can assure you.  Instead to inspire others to look beyond the surface of a grieving friend or family member. To consider how families are affected by loss, emotionally, psychologically and spiritually, as well as the unique family dynamics that result; which might help you comfort, support and encourage them. The bereaved desperately want to be understood, to have their feelings validated, to break free of the isolation, to mourn unrushed, to have another share their sorrow (not attempt to fix it). This post was written months ago and is not reflective of my current state of mind.

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Breakdown

It’s time to get up, past time really.  Breakfast, shower, dressing . . . then my turn.  It all takes time, but I just do not want to get up and we’ll be late if I don’t get moving soon.

It’s raining.  Again.  I hate rain during the daytime.  Hair appointments at noon.  Still, I’d rather stay in bed.  Bury my head in my pillow — close my eyes — forget the world, it’s disappointments, my responsibilities — life and the fact that I’m still living it.  Breathe in, breathe out.  Breathe in, breathe out.  Over, and over, and over, and over, and over, and over again.  Why must I get up?  Why must I breathe in and out?  Why must I do it all over and over again?

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For the love of Gracen.

For the love of Gracen.

It’s all for the love of Gracen.

 

 

IMG_2964 (1)My heart is anchored here but I long to flee — from what happened — from what is yet to come — to fly far, far away.  To flee this unwelcome reality — oh, to be able to pretend it never happened!  To be able to board a time machine and travel back, back before the collision, back before diagnosis, back before Katie, before Gracen, before Bethany and Cole.  Back before marriage, back before love, back before David, back before my very existence, erasing every footprint, every memory of me.  Back before every bit of my existence tainted the lives of the people I love far more than life.  Just to have the opportunity to un-hurt others by erasing me.

It’s 10:34 a.m., I have to get up . .

I can’t.  I just can’t do it.

Tears falling.

Call David ask him to cancel our appointments.  Ring, ring.

Oh, no, she’s up! Hang up the phone.  Get it together before she sees you!

IMG_3518Ring, ring . . . Oh, crap, David’s calling back and Gracen’s right here!  I can’t talk in front of her.

Leaping off the bed, head down.

“Hey, Janet, Did you call me?”

Leave the room NOW!  Find a place where she can’t hear you!

“Janet, I can’t hear you . . .”  David’s voice comes over the phone line.

Sob.

“Janet?  Janet? What’s wrong?” David’s voice is Frantic now.

“David?”

“Janet?, What’s wrong?”

More crying.  I hear David’s breath hitch through the phone line.

IMG_3518“I’m sorry I had to leave the room.”

“Where’s Gracen?”

“She’s up.  She’s in the bathroom.”

“What’s wrong?”

Another sob slips out.

“I’ve just run out of the energy necessary to force myself to do this today.  I was just calling to ask you to cancel our hair appointments.”

“I’m coming home.”  Frantic.

“No, no, don’t come home.  I’ll be okay.  I’ll be okay.  I just can’t keep our appointments. Not enough time left now anyway.  I’m up.  I can take care of Gracen.  I just don’t want her to see me like this — to worry her.”

“Where are you?”

“Katie’s room.” The room next door to Gracen’s that now holds two twin beds without sheets and blankets, void of anything personal.  Katie’s empty room spins through my mind.

“I’m sorry for upsetting you.  Can you please just cancel our appointments?  I can’t talk to anyone right now.”

“Sure”

“Don’t come home, David.  I’ll get it together.  I’m sorry. I’m so sorry!”

Forty-three more days until Gracen heads to college.  I simply cannot unravel for forty-three more days.  I tell myself, take your meds —  get it together.  You can get up for forty-three more days.  You can.  You can.  You will.

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The Calm After the Storm

Wow! How did that get so out of control?

It was Gracen’s appearance at the same time David called back. The ring tone flooding my system with adrenaline, silent tears turned to sobs as I desperately tried to flee my room preventing Gracen from seeing me in such a state.

Oh, she’s seen me cry before, but only the controlled version.  Not ugly, wretched sobs.

But today I was not able to shelter Gracen from my grief.  I upset her although no words were spoken.  I know she is afraid she will lose another family member; she recently admitted as much.  I fear that too, but for her, all that’s left to lose are her parents — the people who have always represented safety and security to her.  I don’t want to inflame her fears.

And David — he’s seen discouragement and apathy, he’s held me through tear filled nights, he’s shouldered extra burdens when normal parts of life just seem to overwhelm me.  He’s been party to a meltdown or two or ten, but to receive a call at work — never before has he had to cope with a long distance breakdown even when I called to tell him an ambulance was transporting Gracen and I to the ER after a frantic 911 call. Today, I could hear the fear in his voice. It devastates me to know I did that to him!

Heaping fear upon grief — I shoulder my load — Gracen’s and David’s too, as they are forced to shoulder mine as well.  Grief felt far more individual when Cole died — or maybe time has just softened the memories, blurring the rough edges of grief, leaving some sharp and biting and others smooth and fading.

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Helping the Bereaved Bear their Burdens

1.  Understand that it is often a struggle for those who mourn to get out of bed, do everyday tasks, leave their homes, socialize. Others become hyper involved; anything to keep themselves moving, distract themselves from the constant pain. Those who mourn may bounce back and forth between the two extremes.

2.  Realize that the bereaved often perform a grieving cha, cha, cha of sorts.  They try to attack their grief, process and get through it, then overwhelmed, try to suppress it, hide from it, deny it’s existence and ignore it.  Be prepared to go with the flow.  Talk through their struggles with them if they bring them up, or grant them the freedom to talk about other things.

3.  Be aware that grieving families often continue to be hit with additional health problems, trips to doctors, hospitals and emergency rooms can trigger mild to dramatic IMG_3339traumatic responses. What may be a minor problem produces anxiety on steroids. Pray them through, sit with them, validate their fears.

4.  Wives seem to take responsibility for maintaining the emotional equilibrium in the home: husbands strive to protect and shelter.  Loss makes both feel anywhere from inadequate to utterly incompetent.  Grieving men need attention too. Most will never ask for it. Invite men to sporting events, movies, poker night, fishing or lunch. They may not talk about their grief, but your presence signals support and encouragement.

5.  Understand that deep grief often brings remorse for having been born at all.  Job felt this way.  Pay attention to suicidal comments — don’t discount them.  A desire to have never been born and suicidal intentions are not synonymous, however, comments to that effect should not be overlooked.  Pray for wisdom and discernment to hear exactly what the individual is communicating through veiled speech.

6.  Be aware that the sense of personal safety and security has been destroyed for every member of the family.  Fear of experiencing another loss  is both common and rational. While uncommon, many families have suffered separate and subsequent deaths of immediate family members. Please don’t discount or brush off a bereaved parent’s fears in this area. It is a legitimate fear and they need it acknowledged.

 
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Posted by on February 27, 2016 in Faith, Grief, Muscular Dystrophy

 

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I Can’t Do This Anymore!

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Why a glimpse behind the curtain to the deeply personal and hidden grief of a bereaved parent? Not to inspire your pity; of that, I can assure you.  Instead to inspire others to look beyond the surface of a grieving friend or family member. To consider how families are affected by a loss, emotionally, psychologically and spiritually, as well as the unique family dynamics that result; which might help you comfort, support and encourage them. The bereaved desperately want to be understood, to have their feelings validated, to break free of the isolation, to mourn unrushed, to have another share their sorrow (not attempt to fix it). This post was written months ago and is not reflective of my current state of mind.

 

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I Can’t Do This Anymore!

deep-sorrowThere are days and moments and very long nights when I think, I can’t do this anymore. Come to find out, that simple thought is a trigger for tears.

Intellectually, I know I can.  Physically, I know I can.  Emotionally, well there’s where the breakdown happens.

I don’t know if my impending empty nest is permanent or temporary.  I know who I am for the next three months but not who I will be after that.  I’m really afraid of that answer.

Emotionally I am weak, very weak.  Within the borders of my emotions I fear failure — to prepare Gracen for what’s ahead for her physically — to be there for her in an effective way — to watch her experience the devastation wrecked by progressive disease — to experience it for myself alongside her — to watch David experiencing it alongside her, alongside me. To see the toll it takes on each one of us individually as we somehow images (42)continue to put on a brave face and hide the true depths of the pain and sorrow from each other so as not to increase their individual burden in this bizarrely intertwined protection dance we unconsciously perform.  And as all this plays out within our home and personal relationships, the current culture demands that we have a positive attitude and recognize our blessings. It’s exhausting. It’s overwhelming.  It’s frustrating. It’s impossible.

Moments such as this one, Progressive Disease – A Moment of Triumph, are rare and bittersweet.  (At the beginning of the clip, keep your eyes on the right side of the screen so you don’t miss Gracen’s appearance.)

“Don’t be afraid — trust God”, we are told in the midst of situations where there are very real things to fear.  Sorry, those commands, biblical or not, are not helpful.  I’m not saying they are wrong, just that they aren’t comforting and encouraging. It’s almost impossible to talk yourself out of fear — especially after your worst fear has already been realized. Those words, “Don’t be afraid — trust God”, heap indictment of failure on already emotionally overburdened believers who interpret those words as an accusation — “You aren’t trusting God”, instead of as the encouragement they are intended to be. At the same time, the searing pain within testifies to the truth that what we are trusting God for is eternal in nature. We are terrorized by the knowledge that our desires, for ourselves and those we hold dear in this temporary world, play second fiddle to God’s purposes.  This, of course, I can attest to from all too much personal experience. God’s will serves our ultimate eternal good but the rub is that we reside in the here and now. And while from an eternal perspective our lives are no longer than a blip on a radar screen, in the here and now that blip lasts ten, twenty even thirty years or more.  Our afflictions are light and momentary from an eternal perspective but they don’t feel that way in the day to day.

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Yes, I need to cultivate an eternal perspective, lay up eternal treasures, yadda, yadda, yadda.  But frankly, there are days, moments and very long nights during which I’m too emotionally frightened and exhausted to exercise my spiritual muscles.

 

 



 

Helping the Bereaved Bear their Burdens

1.  Pray that the bereaved will put on the full armor of God.  Their faith is under attack and they are exhausted and deeply vulnerable.

disenfranchised-grief-52.  Avoid the use of platitudes and trite phrases. They serve to frustrate and unconsciously communicate unintended messages.  (i.e., faith and trust in God mean things hurt less, our hope for eternity exchanges grief for joy, joy and happiness are the same thing, the salvation of the lost justifies the death of a loved one).

3.  Be extremely careful in the use of Romans 8:28,  “And we know that all things work together for good to them that love God, to them who are the called according to His purpose.” (KJV)  There are a time and place for every season under heaven.  There are a time and place for this verse. I personally think it’s more harmful than helpful in the face of raw grief and more appropriate a year or two down the road when the bereaved can look back and hopefully recognize the fulfillment of this promise.

4.  Be cognizant of the fact that believing God has filtered everything through His hands before allowing it to happen can lead a believer to blame God for the tragedies that befall them.  In truth, spiritual warfare, an individual’s exercise of free will or the fall of man that affected all of nature are responsible for the death of their loved one. The fact that God allows bad things to happen to His children is not the same as causing bad things to happen. For all we know, Satan was tempting while God was pleading when another’s actions lead to the death of a loved one. “For ours is not a conflict with mere flesh and blood, but with the despotisms, the empires, the forces that control and govern this dark world–the spiritual hosts of evil arrayed against us in the heavenly warfare.”  (Ephesians 6:12 ~ Weymouth New Testament).

0372730254f966f20889e1599ae7c79d5.  Validate feelings.  A grieving father who feels like beating the crap out of the person responsible for their child’s death is normal.  It’s okay; it’s helpful actually to say, “I’d feel the same way if I were you.” Validating feelings in no way condones sinful actions. Feel free to tack on, “You’re not planning to act on that, are you?”, if in doubt.

6.  Do NOT correct the emotions of the bereaved. Emotions are not right or wrong; they were designed by God and serve a purpose.  A fellow new-perspectives-in-borderline-personality-disorder-73-728mourning mother recently told me, “Emotions are for emoting.” How an individual responds to their emotions can be right or wrong but never simply expressing them.  Do NOT tell the grief-stricken that they can’t or shouldn’t feel any given way or that their feelings are sinful!

7.  Affirm the bereaved’s ability to continue on.  Be there for them through cards, text messages, phone calls and lunch or dinner dates.  Don’t take it personally if your call and invitations go unanswered. Simply try again another time.

download178.  Before you offer any advice, imagine yourself in that individual’s shoes; then personalize the advice.  You are now the parent whose child just committed suicide. Consider how you might feel should someone tell you to count it all joy, or that God is good all the time, etc., before you offer any advice to the bereaved. Perspective changes when things get personal.

9.  It is indeed rare for a bereaved person to continue in deep grief for an extended period of time (more than two years).  There are always a few who never recover, however, Christians need to trust that God will heal the hearts of the bereaved as His word promises, in His time. There is a time to mourn and a time to dance (Ecclesiastes 3:4b KJV). When you encourage a fellow believer to move on, choose joy and be thankful for what they still have, you are, in effect, expressing that you yourself don’t trust God to heal their grief, but instead believe that the grief-stricken Christian must work to heal themselves.

 
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Posted by on February 24, 2016 in Adversity, Faith, Grief

 

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