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Seasons of Disease and Death – Where Life Gets Real

I’ve been reading and meditating on John Chapter 9 and 11 of late. Those two chapters are significant to me because they touch on the very things that have most impacted my adult life – disability (or illness) and death.

John 9 chronicles the story of Christ healing the man blind from birth.

John 11 tells of Christ raising Lazarus from the dead.

As I mulled those scriptures over in my mind I looked for similarities and differences. I noted that the blind man didn’t seek Jesus out for healing, but Jesus healed him anyway. And as I thought about that blind man I wondered why he didn’t seek out this miracle performing man. Surely he had heard the gossip. John 9:32 might answer that question for us.

“Since the world began was it not heard that any man opened the eyes of one that was born blind.”

The blind man held no hope for healing. Never had it been reported that a man born blind had been made to see. It was a foregone conclusion in his mind that he would never see the world around him. Why chase after the prophet who was stirring up so much controversy? How could he even find his way to the prophet? So he sat in acceptance of the circumstances he had always known with no hope of changing them as the world passed by around him.

I understand that mentality all too well. It’s hard to carry the hope of healing while simultaneously accepting what is deemed unchangeable. How does one invest the effort required searching for a cure while expending so much energy coping with what is? How was the blind man supposed to hunt for this wandering prophet when his very survival was contingent upon the alms he begged for day after day?

On the other hand, Mary and Martha knew that Lazarus could be healed. They had access to Jesus. They had cultivated a relationship with him. They believed He was the long awaited Messiah. They had likely seen Him heal others. So they sent for Jesus communicating their dire need for His presence. And then they waited . . . and waited . . . until it was too late and their brother was dead.

And when Jesus finally showed up their deep anguish bubbled up and out their mouths as they each told him that Lazarus would not have died if he had been there. Their faith is revealed alongside their confusion and vulnerability. They trusted Jesus to come, to step in and save the day. But he didn’t do it. And they still trusted him for resurrection at the last day.

One man without faith – without hope.
Two women with faith – with hope.

And in a rare turn of events Jesus answers the most common and difficult question that always arises when death and disease become a part of our lives. Why?

Why was this man born blind?
Why did Lazarus die?

And the answers are strikingly similar in both situations. In regards to the blind man Christ responded, So that the works of God could be revealed through him. And when questioned on the reason for Lazarus’s death He replied, So that God and the Son of God would be glorified.

Sandwiched between those two stories is John chapter 10 where Jesus proclaims, “I am the good shepherd”! And in that chapter Jesus lays bare the reason for which he came, “. . . That they might have life, and that they might have it more abundantly (in the fullest measure).” He proclaims his power to both lay down his life for the sake of his flock and to take it up again. He proclaims himself to be the long awaited Messiah. And maybe most remarkable of all is that he flat out tells his audience how to prove that he is not who he says he is. He tells them that if they won’t believe his words, they should believe his works.

And isn’t it interesting that “I am the good shepherd” falls right between the stories of death and disability? In the grand scheme of things what leads us to question the meaning of life more than disease and death . . .

When disease or disability become our eventual reality, we can be confident that there is an important purpose for our suffering – that the works of God might be revealed through us. And when death invades your life, stealing away your hopes and plans we can be assured that God and the Son of God will be glorified.

7 But we have this precious treasure [the good news about salvation] in [unworthy] earthen vessels [of human frailty], so that the grandeur and surpassing greatness of the power will be [shown to be] from God [His sufficiency] and not from ourselves. 8 We are pressured in every way [hedged in], but not crushed; perplexed [unsure of finding a way out], but not driven to despair; 9 hunted down and persecuted, but not deserted [to stand alone]; struck down, but never destroyed; 10 always carrying around in the body the dying of Jesus, so that the [resurrection] life of Jesus also may be shown in our body. 11 For we who live are constantly [experiencing the threat of] being handed over to death for Jesus’ sake, so that the [resurrection] life of Jesus also may be evidenced in our mortal body [which is subject to death]. 12 So physical death is [actively] at work in us, but [spiritual] life [is actively at work] in you. ~ 2 Corinthians 4:7-12 AMP

Our suffering is not in vain but has eternal value. And in the seasons of disease and death, where life gets real and all we’ve worked for and stood for is called into question, stands the good shepherd who is worthy of our faith and trust, who leads us and cares for us and is powerful enough to usher us from this earthly fold into eternity where we will experience life in its fullest measure.


***(From Wesley’s Commentary on 2 Corinthians 4:10 – alittle help understanding verse 10)

” . . . Wherever we go. . . Continually expecting to lay down our lives like him [Jesus]. That the life also of Jesus might be manifested in our body – That we may also rise and be glorified like him.”

 
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Posted by on July 25, 2017 in Chronic Illness, Faith, Grief, Uncategorized

 

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No Need for Introductions

In twenty-five years I have yet to find a satisfactory way to celebrate the birth of my stillborn son. It’s not a day on which I can look back and remember smiles and laughter from days gone by. There are no photos to flip through with nostalgic pleasure. My son Cole, 25 years later, remains a mystery to me. 

I used to think that maybe I might be able to discern at least a core personality trait simply from the way Cole moved within my womb . . . but that, of course, that was simply the musings of a mother who desperately longed for the child she never knew. I dare say I am not the only mother who has entertained such flights of fancy. And in the three years since Bethany and Katie joined Cole in their eternal home, the unknowns have been magnified.

When I cross that great divide will I meet my son as a babe in arms or will a full grown man, standing tall, shoulders back appear before me? Will Bethany and Katie be forever 20 and 16? Will I be an old woman, grey of hair and stooped of shoulder in their eyes or the woman I was when each one left me behind? Will Cole meet me as a woman not yet 30 and Bethany and Katie with the fifty year old mother they last saw? 

I don’t know the answers to the simplest of questions in regards to my children. It is a fruitless pursuit to wonder who they would be today had the events that took each one from me not transpired. But there is one thing I do know. We will know (have memory of) and visually recognize one another. There will be no need for introductions.*

And so, as I find myself once again at a loss, restless and a bit frustrated by the unfulfilled longings of my heart, I also live in anticipation of the day when the waiting is over. When all my questions will be answered and all my longings satisfied.

Then my thoughts circle back to the more practical matters at hand. What to do in recognition of the child who is so much a part of my being . . . 

Will there be cake? 

Should there be?

Balloons released into the air?

Could we, the three of us who remain, enjoy either or would they just magnify the emptiness of the occasion?

And why can’t I answer this question after 25 years?

*See Luke 16:19-31 – The story of the rich man and Lazarus. The rich man clearly recognized both Abraham the Patriarch (whom he had never met as Abraham died before the rich man’s birth) and Lazarus remembering that he sat at his gate covered in sores hoping for scraps from the rich man’s table.

 
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Posted by on June 21, 2017 in Uncategorized

 

The Brutally Honest Christmas Card — D.L. Mayfield

 

childsxmasThe dreaded annual Christmas letter . . . well, that’s how I feel about writing a Christmas letter anyway . . . and I guess I’m not alone!

Our family life has never been filled with exceptional academic, musical or athletic achievements. If I compare my life to the Christmas letters I’ve received in the past, I end up feeling as if every family, except ours, is filled with over-achievers.

What ever happened to the average family? The family that was content with passing grades, musical or athletic participation, and kids who got part-time jobs, were kind, polite and didn’t get arrested? When did keeping it real become passé in exchange for masks of familial perfection?

At some point, writing the annual Christmas letter seemed to demand that I turn myself into a first class spin doctor. Should I have submitted a draft to the Positive Propaganda Police before distribution?

I quit writing that annual letter precisely because it became too hard to spin our everyday life into perfectly positive tidbits. Tidbits fit for . . . my friends . . . my family . . . close acquaintances?

My word!

If I can’t be myself with friends and family; are they really friends? Am I really accepted by family? Am I only worthy if I can frame my little life into a positive façade fit for publication?

If so, I guess I’m not worthy.

The David Boxx branch of the family tree is not “practically perfect in every way.” We are human. Life throws us curve balls. We struggle. We screw up. We don’t always make the best decisions or the wisest choices. We do our best. We fall down and sometimes we stay down for awhile. We adjust, adapt and try something new—and it’s often not very pretty.

So last year when I came across this blog post I uttered a heartfelt, ‘Hallelujah!’

Here’s to keeping it real—to being ourselves instead of fitting in.

Here’s to life—good, bad and ugly!

Let’s live life instead of paraphrasing and editing it!

Follow the link below for inspiration on how to get started.

Source: The Brutally Honest Christmas Card — D.L. Mayfield

 
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Posted by on November 30, 2016 in Uncategorized

 

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Magical Bear Traps

Magical Bear Traps

Here you go – a bereaved parent at Christmas – I’m partial to Vanilla Chai Lattes with my scones!

thelifeididntchoose

My heart hurts every time a name is added to this awful “club” no one wants to join.

One more family knows our pain.

One more family has an empty chair at holiday gatherings.

woman-looking-out-of-window

But I am thankful for the moms and dads that share their hearts in bereaved parents’ groups.  I’m thankful for the safe space to speak honestly about what this life feels like and the challenges that greet us in this Valley.

A  fellow waiting mom, Brenda Ehly, shared this on her personal Facebook page.  I asked her if I could post it here and she graciously gave me permission:

“So, every now and then, I am asked, ‘How are you?’

Just in case any of them meant, ‘What is it like to be grieving a child during the holiday season?’ let me try to explain:

First, imagine you have stepped into a bear trap.

bear-trapIt hurts.

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Posted by on November 27, 2016 in Uncategorized

 

Stay

Jesus was a storyteller. He used everyday examples He knew His audience could relate to in order to teach biblical principles. He understood the power of a good analogy.

This blog post paints a vivid word picture describing a thought provoking truth regarding a Christian’s struggle to wait upon the Lord. Frankly, it was a valuable, yet painful read for me, in this season of my life. But I believe Adrien Rogers got it right when he said,

“It is better to speak the truth that hurts and then heals, than falsehood that comforts and then kills.”

Follow the link below by clicking on the word “Stay” highlighted in red to read the article from blogsite “Patchwork Scraps of Life”. I added the scriptures below the link regarding waiting upon the Lord  for your review.

The command was clear and firm… and it appeared to be just about killing her…

Source: Stay

Psalms 130:5-6 “I wait for the LORD, my soul waits, and in his word I hope; my soul waits for the Lord more than watchmen for the morning, more than watchmen for the morning.”

Psalms 27:13-14 “I believe that I shall look upon the goodness of the LORD in the land of the living! Wait for the LORD; be strong, and let your heart take courage; wait for the LORD!”

Isaiah 30:18 “Therefore the LORD waits to be gracious to you, and therefore he exalts himself to show mercy to you. For the LORD is a God of justice; blessed are all those who wait for him.”

Lamentations 3:25 “The LORD is good to those who wait for him, to the soul who seeks him.”

Micah 7:7 “But as for me, I will look to the LORD; I will wait for the God of my salvation; my God will hear me.”

 
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Posted by on July 21, 2016 in Adversity, Faith, Links, Uncategorized

 

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Easter, Co-Wounded with Jesus

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Jesus of Nazareth was humiliated, tortured, and ostracized.  For some of us, the passion (suffering) inflicted upon Jesus is not so unlike what many of us have experienced in terms of our own traum…

(Clink on the link highlighted in red below to read the article.)  

Source: PTSD Spirituality: Easter, Co-Wounded with Jesus

 
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Posted by on March 27, 2016 in Adversity, Faith, Links, Uncategorized

 

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Remember: Why Good Friday Matters as Much as Resurrection Sunday

Remember: Why Good Friday Matters as Much as Resurrection Sunday

(Clink on the link highlighted in red entitled “view original post” below to read the complete article and “thelifeididntchoose” to access the blog.)  

thelifeididntchoose

“On the one hand Death is the triumph of Satan, the punishment of the Fall, and the last enemy. Christ shed tears at the grave of Lazarus and sweated blood in Gethsemane: the Life of Lives that was in Him detested this penal obscenity not less than we do, but more.
On the other hand, only he who loses his life will save it. We are baptized into the death of Christ, and it is the remedy for the Fall. Death is, in fact, what some modern people call “ambivalent.” It is Satan’s great weapon and also God’s great weapon: it is holy and unholy; our supreme disgrace and our only hope; the thing Christ came to conquer and the means by which He conquered.”  C.S. Lewis,  Miracles

Bury a child and suddenly the death of Christ becomes oh, so personal. The image of Mary at the foot of the…

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Posted by on March 25, 2016 in Faith, Links, Uncategorized

 

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Rest Ministries – Needing & Accepting Help

Please follow the link below entitled “view original post” (in red) and read the article originally posted on restministries.com. You don’t have to suffer from a chronic illness or disability to gain something useful from this post. The truth is, we all need help at some point in time.

Today, I met with a Benefits Protection & Planning Representative for the state of Arkansas. Dealing with SSI and Medicaid is both humbling, anxiety inducing and confusing. I am so thankful for Jerry Clawson who is committed to helping me safely navigate the complexities of available services. Making the wrong choice can cause your child to loose much needed medical benefits or financial assistance for adaptive equipment, among other things.

Jerry may simply be doing his job, but he doesn’t perform it that way. He’s been incredibly responsive and understanding. Today, he allowed me to stop by without an appointment. He didn’t have to do that, but I’m so thankful and glad he did because my PTSD, depression and anxiety issues leave me struggling to do the simplest of tasks. I simply can’t make myself place phone calls and schedule appointments. It’s easiest for me if I can make must needed stops after I’ve already been required to leave the house for some reason. And that’s what happened today. I called Jerry and he made himself available. I’m sure it wasn’t a big deal for him, but it was huge for me.

I’ve had the signed documentation ready for him for approximately a month and I knew if I didn’t meet with him today, it could be quite some time before I managed to make myself try again. I don’t understand the psychology behind my issues, and I’m extremely embarrassed by the fact that simple tasks have grown monumental to me, but, I can’t simply make up my mind to do things and get it done. Instead, I’m trying to work with what I am able to do and hope the rest will resolve itself in the near future.

Last summer I attended College Bound Arkansas with my daughter, Gracen. It’s a program that prepares kids with disabilities for the transition to college. I met numerous parents during the course of our stay and discovered that they are all struggling to find services for their children. It’s a prime example of the blind leading the blind. We don’t know what resources are available, who to ask, or how to find them and generally happen upon them by chance via a conversation with another parent, a specialist or a physical or occupational therapist. If you do find someone that can point you toward available services you are often handed an extensive list of providers and have to wade through the entire thing to find out exactly what services your child might qualify for. It’s overwhelming and frankly, parents (not just me)  get so confused, they simply quit and soldier on alone.

In the aftermath of the car collision that killed two of my daughters and left Gracen badly injured at a time when my husband was between jobs, we found ourselves needing to accept help in ways we’ve never needed to in the past. David and I were overwhelmed with gratitude and yet found ourselves uncomfortable to be on the receiving end of the equation in spite of our desperate needs. This is what the author of this blogpost, Shelly Hendricks had to say on the topic:

“We all want to give help. We want to be the answer to prayer. It makes us feel weak to accept help. It makes us feel hopeless to ask for it.

And yet, God has been convicting me.

Receiving is not passive.

Receiving is submitting. Accepting is playing an important part. Asking is admitting that you are just like the ones you’ve helped before. . . and will again, in small and big ways.”

 

See what else Shelly has to offer below.

Boxx Banter

restministries

http://restministries.com/2014/08/difficult-need-accept-help/

Needing help is definitely humbling and yet it’s greatest blessing is the opening of spiritual eyes to see the nail scarred hands that prompted those around you to meet needs, and extend kindness and comfort that reaches far beyond the gift offered or act of service rendered. Brings to mind Psalm 8:4, “What is man, that thou art mindful of him? and the son of man, that thou visitest him?” Beyond all human comprehension somehow His response has been a sincere and quiet, “Mine. The apple of My eye.”

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Posted by on February 19, 2016 in Chronic Illness, Uncategorized

 

Insights on Suicide

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Last October I came across this article (highlighted in red below) on the suicide of Patti Stevens by Rudolph Bush on the Opinion Page of The Dallas Morning News:

No, Patti Stevens wasn’t selfish. She was hurt.

As a member of the bereaved parent’s group, While We’re Waiting, I’ve encountered several parents of children who’ve committed suicide.  It’s heartbreaking!  It’s disturbing to read of children as young as 11 years of age, taking their own lives.  I can only imagine the agony, the second guessing and the questions the grief stricken families are left struggling with.  The impact on the entire family when a child dies (regardless of the means of death) is staggering (but that’s an article for another day).

Journalist, Rudolph Bush covered this topic well and he certainly got it right when he said of Patti Stevens, “She was trying, in a desperate, mistaken, terrible way, to stop hurting.” Bush’s comments were made in response to critics who contend that those who commit suicide are selfish. I also appreciate that he points out, “. . . the suicidal have fallen into a place where their sadness, fear and desperation have stripped away the ability to think and act rationally.”

Still, I think it’s a serious mistake when we assume, “Things would have gotten better.” That was probably true for Patti Stevens and a multitude of others who contemplate suicide, but it’s certainly not true in every situation which is why organizations such as Death with Dignity exist. It’s why assisted suicide is a hot button issue of our day. Don’t get me wrong, I am not a proponent of suicide at all, but we are naive if we fail to recognize that, in some situations, things will get worse.**  Families coping with terminal illness, with addiction, and a number of other issues know, without doubt, that their circumstances will indeed get worse.  They know more pain is on the horizon and they are afraid and desperately want to escape the pending heartbreak. When it’s true that things will get worse, we have to find a way to help people cope with that truth; to find purpose and meaning in life.

We’ve all heard the popular phrase, “everything happens for a reason” at some point in time; usually when something unpleasant transpires. Tim Lawrence wrote an article on that very topic. Mr. Lawrence used his article to strike out against the culturally common advice passed to people coping with trauma and grief – advice he refers to as “the debasing of the grieving”.  In the piece published on his blog entitled, “The Adversity Within”, he shares this quote from Megan Devine, “Some things in life cannot be fixed. They can only be carried.” Of Ms. Devine’s quote he says,

“These words are so poignant because they aim right at the pathetic platitudes our culture has come to embody on a increasingly hopeless level. Losing a child cannot be fixed. Being diagnosed with a debilitating illness cannot be fixed. . . They can only be carried.”

We live in a culture that demands positivity. Obstacles are opportunities in disguise.  If we can’t go around said obstacle, we must find a way over, through or under it.  Nothing is impossible.  We will overcome. We will conquer; by sheer force of will if necessary. And the underlying message is that, should we fail, we are incompetent or didn’t try hard enough.

img_0428We’ve been indoctrinated with the message that we must be able to turn every negative into a positive. Our culture as a whole no longer helps people work through their grief, instead we demand that they set it aside, suppress it, or spin it into an uplifting message – all the better if they can tie it up with a Biblical bow. As a result, we leave hurting people enmeshed in an internal battle pitting their normal need to express and work through their pain and sorrow against societies demand to find the silver lining and move forward.

If we sincerely want to reduce the suicide rate, we all have to learn to become comfortable with the bad and ugly aspects of life instead of pretending they don’t exist or glossing over them. We need to learn to acknowledge pain, validate feelings, and affirm the broken before they lose the ability to think and act rationally. In my experience, people want to be seen, to be understood and to feel as if they are not alone when their days turn dark. People can survive almost anything – they can learn to carry that which cannot be fixed – if we provide them with those things.

** The comments in this post in no way serve as permission to take one’s own life.

SuicidePrevention

 

 

 

Print a copy of this National Suicide Prevention Lifeline image and stick it on your refrigerator.

It may save the life of someone you love.

 

 
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Posted by on February 16, 2016 in Adversity, Chronic Illness, Grief, Links, Uncategorized

 

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