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About Janet Boxx

My name is Janet Boxx. I earned a Bachelor's of Science degree from Northwest Missouri State University before working at Mark Twain Bank and then Sprint. Following the birth of my fourth child, I left the business world to focus my attention on raising my family. In my lifetime, I've been inducted into two communities no one wishes to gain membership in; the special needs community and the bereaved parents society. I'm a wife, a mother and a follower of Jesus Christ. Like many of you, my life has not been a walk in the park. It's been challenging in a number of ways and has caused me to examine my beliefs, almost everything I thought I knew about God, with what His word actually says about Him. I'm comfortable with my struggle, but well, I'm afraid that other believers may not be comfortable with my confrontational approach as I question and search for understanding. I am in desperate need of real answers, real truth, and am a big believer in authenticity. Therefore, I'm not known to "drink the kool-aid" so to speak. I hate platitudes and simplistic answers to complicated issues. I believe the Bible is the inspired, infallible word of God, and that every word is "profitable for teaching, for reproof, for correction, for training in righteousness" just as 2 Timothy 3:16 proclaims. Heaven knows I don't always get it right, and at times I concede that I cannot find an answer, and choose to trust that the Holy Spirit will reveal it in time or that He will enable me to find peace in spite of my questions. As a result, I'm open to others questioning my conclusions, I just ask that they aren't worded as an attack but instead by pointing me to another scripture and asking me to consider it in light of the conclusions I've drawn. A little background may help you understand my blog posts, so here is my life in a nutshell. I married my husband, David, in 1987. Our son, Cole, was stillborn on Father's Day, June 21, 1992. We went on to have three beautiful daughters. Bethany was born in November of 1993, Gracen in December of 1995, and Katie arrived in October of 1997. We noticed some developmental concerns when Gracen was about a year of age. Katie developed similar issues around her first birthday as well. Their physical issues were minor and the pediatrician was not concerned. But as Gracen and Katie grew, the physical issues became more pronounced, affecting both their fine and gross motor functions which impacted daily life and learning. Fifteen years and multiple and doctors and tests later, in the spring of 2012, we finally received a diagnosis. Gracen and Katie had been born with a rare form of Muscular Dystrophy. ARSACS is a progressive neuromuscular disease. The prognosis was not pretty and we were devastated. I had so hoped a diagnosis would lead to a cure - a medication or treatment that would give the girls a normal life. During that fifteen year time span, Gracen also developed chronic daily migraine headaches. Life was challenging to say the least. The day after Christmas 2013, life got harder. As we returned home from celebrating Christmas with family, our van was involved in a three-vehicle collision. Bethany and Katie died that afternoon. My first blog post was written a few months later, in March of 2014. I've edited that post in order to correct minor details that I was unaware of when it was originally written and posted on Facebook. Otherwise, it remains as it was. My hope is that my posts will serve to validate the feelings of others who are struggling with difficult circumstances and trying to assimilate their feelings and beliefs, as they too, try to hold on, get through, and avoid bitterness. So welcome to our world. Join me as I continue to live life in the Refiner's fire. In and out I go as God allows the dross to rise and be swept away until He can see His reflection as He looks upon me. Please share your thoughts (speaking the truth in love) and let iron sharpen iron as we banter back and forth as we each struggle our way through this life until God calls us home. Janet

Move or Remodel?

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Why a glimpse behind the curtain to the deeply personal and hidden grief of a bereaved parent? Not to inspire your pity; of that, I can assure you.  Instead to inspire others to look beyond the surface of a grieving friend or family member. To consider how families are affected by a loss, emotionally, psychologically and spiritually, as well as the unique family dynamics that result; which might help you comfort, support and encourage them. The bereaved desperately want to be understood, to have their feelings validated, to break free of the isolation, to mourn unrushed, to have another share their sorrow (not attempt to fix it). This post was written months ago and is not reflective of my current state of mind.

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Move or Remodel?

Several months ago David and I wandered down the hall to the main bathroom in our home.  We stood inside and outside the doorway discussing if it was possible to widen the doorway (which sits on an angle) to enable Gracen’s wheelchair to fit through the door and other changes to make the bathroom accessible for her. It was a frustrating discussion because changes could be made that would work for now but maybe not down the road as Gracen needs a bigger wheelchair or moves into a power chair that has a wider base.  If we remodel to fit Gracen’s current wheelchair, the changes would make it harder to sell our home later.  What was the best choice for now?  For the unknown later?  How to decide?

At one point I sat down on the closed lid of the toilet, bowed my head and grasp the hair on either side of my head pulling it away and growled in frustration. David’s eyes rounded and fairly popped out of his head in alarm as he asked, “Are you OK?” To which I responded something along the lines of, “NO, I’M NOT OK!!   No, no, no, no, no, I am so very far from OK!  I’m completely overwhelmed and I’m so freaking tired of trying to find the positive in the negative, of getting up every day without Bethany and Katie, of watching Gracen’s body change, of living!”  A sob escaped and tears fell as David pulled me to my feet and wrapped me in his arms until the tears subsided.

I didn’t, I still don’t want to move away from my home.  Figuring out what we need in a new home is overwhelming; it’s costly, and how am I suppose to plan for the unknown future?  How do I leave this place where my children grew up without them?  How do I move into a new place without them around to make new memories?  This home bears witness to their existence.  To love and laughter and tears — to the last remnants of our intact family (as much as any place could in the absence of our stillborn son, Cole).

That young man stole my daughters and Gracen’s mobility and now here I am, sorting through Bethany and Katie’s things in fits and starts, parsing out their lives bit by bit. Give it away? Keep it?  Oh, God, throw it away?  Troy Robins, an unlicensed & reckless driver, took Bethany and Katie’s lives and now I’m systematically removing them from my home; from their home.  It feels so very wrong — as if I’m throwing my children away.

No, no, no, no, no, I am so not OK!



 

Helping the Bereaved Bear their Burdens

1.  Listen closely to what the bereaved say.  If they tell you they are struggling with something, try to think of practical ways to help. Pray for those specific concerns.  Keep your eyes open for needs they might not mention; yard work, snow removal, dishes that need to be washed, etc., then step in and take care of it.

validation-quote2.  Realize that you cannot fix their sorrow and they don’t want you to try. They want their pain acknowledged, not ignored, not rebuked, not corrected, and definitely not minimized. Validate their feelings and affirm their ability to carry on. Be aware that their faith may be strong but they are weak in so many ways.  They will likely feel as if their faith is not sufficient to see them through. Do NOT imply or state outright that God allowed their loss because their faith was strong enough to survive their loss!

3.  If they tell you they are having a hard time going through their loved one’s things, offer to come and help, or to simply sit with them as they do it.  Do NOT try to go through those things with a get ‘er done attitude.  Expect to listen to the bereaved reminisce.  Expect tears.  As uncomfortable as tears make us feel, they are a much-needed outlet for the grieving.  Venting their sorrow is healing, so don’t cut and run at the first sign of tears. Locate the tissues.  Offer hugs, if appropriate.  *Please note, an offer to help with a task such as this should generally be extended by a close personal friend or family member.

images (39)4a.  The grave site can be a place of comfort or distress.  Every bereaved individual is different (which I realize makes supporting the grief-stricken challenging and scary). Some spend a lot of time at the cemetery, others rarely go.  It’s generally a big deal when the headstone is finally placed.  The headstone often represents the only permanent legacy of the deceased. Offer to take the bereaved to the cemetery. Comment on the things you sincerely like about the marker they’ve chosen and the location selected. Never offer a negative opinion about either the burial site or the headstone!

images (40)4b.  Likewise when the deceased is cremated, the day the bereaved receive their loved one’s ashes is also a big deal. They’ve carefully chosen the urn—no negative comments! Some people display the urn, and others choose not to. Validate their choice as there will be people who are uncomfortable seeing an urn prominently displayed in a home and they will, unfortunately, let their feelings on the matter be known.  There will also be people who will not understand if the grief-stricken choose not to display the urn.  The bereaved often feel torn on such matters, and they need to do what feels best to them.  No good, but plenty of harm, can come from burdening the bereaved with other’s opinions and expectations.  If the bereaved choose to scatter their loved one’s ashes, honor their decision both in regards to how they wish to do it and who they wish to be present.

589232dd75cf172bd2447b660095985e5.  Extended family needs to honor with grace the way those in mourning choose to handle holidays, anniversaries and birthdays.  I’m well aware that extended family members also grieve and may be disappointed or even hurt when the bereaved choose to forego family gatherings.  But frankly; it’s not about you! The highest degree of consideration should be shown to those with the closest personal connection to the deceased. Piling guilt upon grief is insensitive and unkind. Expecting the bereaved to celebrate, to be surrounded by intact families, to shake off their sorrow for the sake of the rest of the family is unrealistic and frankly puts undo strain on the brokenhearted. Family togetherness may be beneficial to some, may lift their sorrow and make them feel supported, but not to others. Be considerate.  Love your bereaved family members enough to set aside your own desires in order to grant them the freedom to mourn without criticism and resentment for the choices they make.

**A word about bereaved parents of married children.  When a married son or daughter dies, a unique set of circumstances arise.  Depending upon the parent’s relationship with their in-law, things can go smoothly or be very difficult; especially when grandchildren are involved.  Please pray for these families.  Pray that the grieving parents and in-law can agree on funeral and burial arrangements, on seeing and spending time with the grandchildren, on holiday and anniversary plans.  Emotions run high, relationships can be destroyed, and heartbreak can be compounded.  Pray that both the parents and the in-law will be considerate of the other, that they will each be willing to compromise, and that the best interest of the grandchildren will be a priority on both sides.  As a friend of either the parent or the in-law, allow them to vent their frustrations and I can’t say this enough, validate their feelings!

IMG_93356.  Assume that everything the bereaved tells you about how they are feeling or challenges they are facing, is confidential. A solid friendship can be utterly destroyed if the bereaved feels they are being gossiped about.  Grief is hard.  It hurts.  Should someone inquire as to how the bereaved is doing, a safe response is, “She’s okay. She’s working through her grief.” Feel free to ask the bereaved how they would like you to respond to questions about their well-being and if there are prayer requests you can share. When in doubt, go with the safe response above.  An individual who is normally an open book may become uncharacteristically private when they feel most vulnerable.  Err on the side of discretion!

7.  Be aware that the death of a loved one often leads to further problems, such as our need to find a fully wheelchair accessible home.  Families are often left with staggering medical bills, traumatized children, loss of income, broken marriages and deep spiritual wounds. The bereaved are left emotionally overwrought, frightened and sadly, ashamed. Pay attention and look for practical ways to help.

 
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Posted by on February 23, 2016 in Faith, Grief, Muscular Dystrophy

 

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I Don’t Have to Say Goodbye!

(Originally published on Facebook 12/5/14)

Love this song – it fills a spot in this grieving heart. This morning I happened to reread a journal entry I wrote July 10th. I was in a contemplative mood, I guess, because I wrote, “I get the impression that within the Christian community we believe the presence of peace equates to the absence of pain and sorrow. True peace, as I understand it, is the absence of fear – not the absence of pain, sorrow, anger, frustration, and a multitude of other emotions.” I can only think of one place in my Bible where God told someone not to mourn – Ezekiel 24: 15-27 – and as in everything else God does, there was a purpose. Ezekiel’s failure to grieve in the outward manner that was typical of the day, served as a powerful sign to the House of Israel. His unexpected, and obedient behavior ensured the prophecy God had given would be heard and remembered.

I thought I’d include the lyrics here. Words are important to me, Getting them right, matters. I think I’d change “I will shoulder the blame” to “I will shoulder the pain”, but then no one asked me!

I also added a few more comments after the lyrics – if you’ve managed to read this far, you might as well read those too!

Lyrics:

Sometimes your world just ends
It changes everything you’ve been
And all that’s left to be
Is empty, broken, lonely, hoping
I’m supposed to be strong
I’m supposed to find a way to carry on
And I don’t wanna feel better
And I don’t wanna not remember,
I will always see your face
In the shadows of this haunted place
I will laugh, I will cry, shake my fist at the sky
But I will not say goodbye
They keep saying time will heal
But the pain just gets more real
The sun comes up each day
Finds me waiting, fading, hating, praying,
If I can keep on holding on
Maybe I can keep my heart from knowing that you’re gone
And I don’t wanna feel better
I don’t wanna not remember
I will always see your face
In the shadows of this haunted place
I will laugh, I will cry, shake my fist at the sky
But I will not say goodbye
I will curse, I will pray, I will re-live everyday
I will show through the blame
I’ll shout out your name
I will laugh, I will cry, shake my fist at the sky
But I will not say
Will not say goodbye
I will not say goodbye
I will not say…

It’s true, sometimes I don’t want to feel better – but, not all the time. It is also a comfort to know that I don’t have to say good-bye. As a believer in Christ, in spite of pain in the loss, I Do Not Grieve As One Without Hope! Therefore, See you soon is far more accurate than good-bye or as the ever bouncy Tigger of Winnie the Pooh fame (the first known individ . . . er, cartoon character, known to use “chat speak” in everyday conversation) was known to say, TTFN – Ta ta for now!

 
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Posted by on February 22, 2016 in Faith, Grief, Links

 

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Satan Hunts Among the Hurting | Desiring God

“Mountain lions detect vulnerabilities in their prey and attack the weakest — the young, the sick, the injured. Studies have confirmed this instinctive cruelty. It’s how the mountain lion lives, following the scent of suffering and feasting on whatever he finds.The enemy of your hope and happiness hunts with that same instinct, with a cold-hearted and ruthless hunger for the weak or hurting. Satan prowls like a roaring lion, seeking someone to devour (1 Peter 5:8). And because he’s clever . . .”

Click See more to red the entire article.

Source: Satan Hunts Among the Hurting | Desiring God

 
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Posted by on February 21, 2016 in Adversity, Faith, Grief, Links

 

Rest Ministries – Needing & Accepting Help

Please follow the link below entitled “view original post” (in red) and read the article originally posted on restministries.com. You don’t have to suffer from a chronic illness or disability to gain something useful from this post. The truth is, we all need help at some point in time.

Today, I met with a Benefits Protection & Planning Representative for the state of Arkansas. Dealing with SSI and Medicaid is both humbling, anxiety inducing and confusing. I am so thankful for Jerry Clawson who is committed to helping me safely navigate the complexities of available services. Making the wrong choice can cause your child to loose much needed medical benefits or financial assistance for adaptive equipment, among other things.

Jerry may simply be doing his job, but he doesn’t perform it that way. He’s been incredibly responsive and understanding. Today, he allowed me to stop by without an appointment. He didn’t have to do that, but I’m so thankful and glad he did because my PTSD, depression and anxiety issues leave me struggling to do the simplest of tasks. I simply can’t make myself place phone calls and schedule appointments. It’s easiest for me if I can make must needed stops after I’ve already been required to leave the house for some reason. And that’s what happened today. I called Jerry and he made himself available. I’m sure it wasn’t a big deal for him, but it was huge for me.

I’ve had the signed documentation ready for him for approximately a month and I knew if I didn’t meet with him today, it could be quite some time before I managed to make myself try again. I don’t understand the psychology behind my issues, and I’m extremely embarrassed by the fact that simple tasks have grown monumental to me, but, I can’t simply make up my mind to do things and get it done. Instead, I’m trying to work with what I am able to do and hope the rest will resolve itself in the near future.

Last summer I attended College Bound Arkansas with my daughter, Gracen. It’s a program that prepares kids with disabilities for the transition to college. I met numerous parents during the course of our stay and discovered that they are all struggling to find services for their children. It’s a prime example of the blind leading the blind. We don’t know what resources are available, who to ask, or how to find them and generally happen upon them by chance via a conversation with another parent, a specialist or a physical or occupational therapist. If you do find someone that can point you toward available services you are often handed an extensive list of providers and have to wade through the entire thing to find out exactly what services your child might qualify for. It’s overwhelming and frankly, parents (not just me)  get so confused, they simply quit and soldier on alone.

In the aftermath of the car collision that killed two of my daughters and left Gracen badly injured at a time when my husband was between jobs, we found ourselves needing to accept help in ways we’ve never needed to in the past. David and I were overwhelmed with gratitude and yet found ourselves uncomfortable to be on the receiving end of the equation in spite of our desperate needs. This is what the author of this blogpost, Shelly Hendricks had to say on the topic:

“We all want to give help. We want to be the answer to prayer. It makes us feel weak to accept help. It makes us feel hopeless to ask for it.

And yet, God has been convicting me.

Receiving is not passive.

Receiving is submitting. Accepting is playing an important part. Asking is admitting that you are just like the ones you’ve helped before. . . and will again, in small and big ways.”

 

See what else Shelly has to offer below.

Janet Boxx's avatarBoxx Banter

restministries

http://restministries.com/2014/08/difficult-need-accept-help/

Needing help is definitely humbling and yet it’s greatest blessing is the opening of spiritual eyes to see the nail scarred hands that prompted those around you to meet needs, and extend kindness and comfort that reaches far beyond the gift offered or act of service rendered. Brings to mind Psalm 8:4, “What is man, that thou art mindful of him? and the son of man, that thou visitest him?” Beyond all human comprehension somehow His response has been a sincere and quiet, “Mine. The apple of My eye.”

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Posted by on February 19, 2016 in Chronic Illness, Uncategorized

 

“PERSUADED BY IMPERFECTION” – Feb. 17

A great article on living an authentic Christian life . . . “We deprive our message of a powerful impact when we pretend to be perfect. My weakness is testimony to the power of Christ in my life.”

(Click on “view original post” highlighted in red below to read the article.)

JD Blom's avatarA DEVOTED LIFE

“But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.  2 Corinthians 12:9-10

She walked into the competition room with a face set in determination.  A faint smile graced her face in recognition of the judges patiently awaiting her arrival.  However, this polite acknowledgement faded the instant she found her mark, centered before the three seated personages, who were to witness her assault on the challenge before her.

She stood before a long table, which separated her from these strangers.  With head slightly downcast and her arms held rigidly at her side, she appeared to be using every ounce of will containing…

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Posted by on February 18, 2016 in Faith, Links

 

Faith & Faithfulness

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You know, there’s a big difference between faith and faithfulness.  I think, at times, I confuse the two. Two years ago in March I posted, “A Mother’s Musings” on the blog site my sister-in-law, Sandy, set up after the car wreck our family was involved in.  It’s also the first blog post I published on Boxx Banter.

In March of 2014 I had things to say, things I wanted others to know or understand, and misconceptions I wanted cleared up.  In the months between the collision and that blog post, my Facebook had become filled with comments about my strong faith.  That was the biggest misconception I wanted to clear up.

I was bothered by those comments for several reasons.  One reason is that I feared people were placing me on some spiritual pedestal I knew I was completely unworthy of, and once there, well, it was only a matter of time before I fell from it in spectacular fashion.

Let me give you an example.  Last summer I took Gracen to one of many medical exams. That particular day the doctor had a medical student in tow.  During the course of our visit the doctor asked me how Gracen was doing emotionally; how we were all coping with the events that had so drastically changed our lives.  Among other things, I commented that humor (dark though it may be) was playing an unexpected role in our recovery.  At that point the well-meaning physician interjected something along the lines of, “And faith. Faith has helped you.”  While this was true, his comment served as a verbal rebuke. You see, as a fellow believer he knew faith was our anchor.  He had an ulterior motive when he asked his question and I failed his test.  He wanted a testimony before his shadowing student, and frankly, I missed the cue.  Had he said, “I know you are a Christian, has your faith helped you to cope?” or “Have you seen the hand of God in the aftermath of your accident?” he would have received much different response.  However, in my own little grief bubble, I didn’t realize his intent.  And that quickly I fell from the pedestal he’d erected and as a result set myself up for criticism and judgment – not that he did either of those things.  But such is the nature of elevating the faith of any Christian because every single one of us will fail.

But even more worrisome than the exposure of my all too human faults, was the idea that people assumed I had some great faith at all.  I felt in failing to correct that misconception, I was sinning by omission.  And this is the place where I think my mind blurred the lines between faith and faithfulness.

Faith is being confident of something beyond the reach of total fact.

Faithfulness, on the other hand, is the consistent repetition of an act.  People live their lives doing many things faithfully, from the tasks required for their jobs to exercise.

The thing is, a believer can become a Christian (by grace through faith – Ephesians 2:8) without becoming faithful and also without faith becoming an integral part of who they are.  Faith can be something we put on and take off in situations we deem appropriate when we continue to feed on the milk of the Word (basic Christian teachings) instead of moving on to the meat of the Word (more challenging Christian doctrines).   In other words, if we don’t commit ourselves to learning and growing in our faith, then our faith simply won’t grow to any significant degree.

Quick Sidebar – I love the way these two translations render Ephesians 2:8!

Aramaic Bible in Plain English
For it is by his grace that we have been saved through faith, and this faith was not from you, but it is the gift of God,

GOD’S WORD® Translation
God saved you through faith as an act of kindness. You had nothing to do with it. Being saved is a gift from God.

Okay, back to business!

When I conceived my first child, I became a mother.  However, conception didn’t initially alter the way I thought and behaved.  In fact, even after I brought my first daughter home from the hospital, I didn’t think like a mother all the time.  One occasion in particular comes to mind; an evening when my husband wasn’t home.  I recall thinking, “Ok, after I get the baby to sleep I’ll put a load of wash in then run to Walmart . . . Uh, what am I thinking?  I can’t put the baby to bed and run to Walmart!”

It took time for motherhood to become ingrained into my being to the point where every decision I made was filtered through my love for my children and my responsibility as a mother.  At that point, I didn’t have to remind myself to think about my children, it became second nature.  The more I behaved like a mother, the more motherhood became enmeshed in my daily life, in my very being.

Christianity (faith) works much the same way in a process known in theological terms as “sanctification”.  Sanctification is a fancy term that means to be made Christ-like. Sanctification is a three phase process.  When a person chooses to accept Christ as their savior, they are deemed “positionally” sanctified, or set apart for a holy purpose.  The new believer then embarks upon a process of “progressive” sanctification.  Every believer stays in this phase for the remainder of their earthly lives.  It is the place where the Holy Spirit in cooperation the believer, changes the believer’s heart, mind, attitudes, motives and behavior in progressive holiness.  The final stage is known as “perfected” sanctification which describes what takes place at death or Christ’s return when the believer is actually made fully Christ-like, completely holy.

I became a Christian long ago and while I was positionally sanctified I didn’t automatically starting acting and thinking like Christ.

images (31)Faith is an integral part of my life.  In many ways it defines me.  However, my true nature is that of a sinful human being.  Faith is second-nature to me.  My first nature, sinfulness, far too often drives me.  Yet, I committed to following Christ and over the years the Holy Spirit has been busy.  More and more often I find my initial thoughts ruled by Biblical truth.  I’ve been changed by God’s unmerited favor with increasing confidence and assurance (faith) that not only does He exist but that I can trust Him to keep His promises.

But regardless of my growing faith, my sin nature can and does lead me away from being faithful to the God I love and believe in.  Sometimes I allow human frailties such as fatigue, disappointment, selfishness and anger as an excuse to skip church, quit reading God’s Word, and avoid ministering to others.

672f1f67a5d29fd4f32305442dbed888I have discovered that I do have a strong faith after all; but that I am less faithful than I expect myself to be.  I don’t need Satan to denounce me as a fraud, my own heart and mind taunts me with that truth. However, the same grace that enticed me to faith, is poured from a fountain of unlimited supply.

Men of faith have shown themselves to be completely incapable of maintaining a covenant relationship with God since creation.  We have failed to keep our commitments, but God has consistently kept His in spite of our faithlessness.  Does God’s grace give me license to sin?  Of course not. But His faithfulness, His loving kindness, His gentleness, His mercy and compassion leads Him to fill my cup to overflowing with grace – grace that is greater than all my sins.

I’m not faithless, but I do fail to be faithful.  Hearing others say my faith is strong no longer makes me feel like a fraud; in spite of the fact that I am not as faithful as I want to be.

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No, I neither lack faith nor do I fail to be faithful.  I know this because as much as I’ve wrestled with my beliefs, with God Himself, over the last two years, the foundation of my faith has not been shaken.  I continue to seek God faithfully, even if it is little more than trying to understand God and His ways in light of my circumstances.  And I think God is teaching me about the fullness of His grace and unconditional love.  I am thankful that God is forever faithful even when I’m not.

 
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Posted by on February 17, 2016 in Faith

 

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Insights on Suicide

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Last October I came across this article (highlighted in red below) on the suicide of Patti Stevens by Rudolph Bush on the Opinion Page of The Dallas Morning News:

No, Patti Stevens wasn’t selfish. She was hurt.

As a member of the bereaved parent’s group, While We’re Waiting, I’ve encountered several parents of children who’ve committed suicide.  It’s heartbreaking!  It’s disturbing to read of children as young as 11 years of age, taking their own lives.  I can only imagine the agony, the second guessing and the questions the grief stricken families are left struggling with.  The impact on the entire family when a child dies (regardless of the means of death) is staggering (but that’s an article for another day).

Journalist, Rudolph Bush covered this topic well and he certainly got it right when he said of Patti Stevens, “She was trying, in a desperate, mistaken, terrible way, to stop hurting.” Bush’s comments were made in response to critics who contend that those who commit suicide are selfish. I also appreciate that he points out, “. . . the suicidal have fallen into a place where their sadness, fear and desperation have stripped away the ability to think and act rationally.”

Still, I think it’s a serious mistake when we assume, “Things would have gotten better.” That was probably true for Patti Stevens and a multitude of others who contemplate suicide, but it’s certainly not true in every situation which is why organizations such as Death with Dignity exist. It’s why assisted suicide is a hot button issue of our day. Don’t get me wrong, I am not a proponent of suicide at all, but we are naive if we fail to recognize that, in some situations, things will get worse.**  Families coping with terminal illness, with addiction, and a number of other issues know, without doubt, that their circumstances will indeed get worse.  They know more pain is on the horizon and they are afraid and desperately want to escape the pending heartbreak. When it’s true that things will get worse, we have to find a way to help people cope with that truth; to find purpose and meaning in life.

We’ve all heard the popular phrase, “everything happens for a reason” at some point in time; usually when something unpleasant transpires. Tim Lawrence wrote an article on that very topic. Mr. Lawrence used his article to strike out against the culturally common advice passed to people coping with trauma and grief – advice he refers to as “the debasing of the grieving”.  In the piece published on his blog entitled, “The Adversity Within”, he shares this quote from Megan Devine, “Some things in life cannot be fixed. They can only be carried.” Of Ms. Devine’s quote he says,

“These words are so poignant because they aim right at the pathetic platitudes our culture has come to embody on a increasingly hopeless level. Losing a child cannot be fixed. Being diagnosed with a debilitating illness cannot be fixed. . . They can only be carried.”

We live in a culture that demands positivity. Obstacles are opportunities in disguise.  If we can’t go around said obstacle, we must find a way over, through or under it.  Nothing is impossible.  We will overcome. We will conquer; by sheer force of will if necessary. And the underlying message is that, should we fail, we are incompetent or didn’t try hard enough.

img_0428We’ve been indoctrinated with the message that we must be able to turn every negative into a positive. Our culture as a whole no longer helps people work through their grief, instead we demand that they set it aside, suppress it, or spin it into an uplifting message – all the better if they can tie it up with a Biblical bow. As a result, we leave hurting people enmeshed in an internal battle pitting their normal need to express and work through their pain and sorrow against societies demand to find the silver lining and move forward.

If we sincerely want to reduce the suicide rate, we all have to learn to become comfortable with the bad and ugly aspects of life instead of pretending they don’t exist or glossing over them. We need to learn to acknowledge pain, validate feelings, and affirm the broken before they lose the ability to think and act rationally. In my experience, people want to be seen, to be understood and to feel as if they are not alone when their days turn dark. People can survive almost anything – they can learn to carry that which cannot be fixed – if we provide them with those things.

** The comments in this post in no way serve as permission to take one’s own life.

SuicidePrevention

 

 

 

Print a copy of this National Suicide Prevention Lifeline image and stick it on your refrigerator.

It may save the life of someone you love.

 

 
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Posted by on February 16, 2016 in Adversity, Chronic Illness, Grief, Links, Uncategorized

 

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Risky Business

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A few months ago, my husband and I met with our insurance agent.  We reviewed all our current policies including our life insurance and, in light of the collision that killed two of our children, updated our beneficiaries.

We also purchased additional life insurance and during the course of the “insurability interview” (at least that’s what I call it) we were asked if we participate in any “risky” activities.  Imagine my raised eyebrows! “Such as . . . “, I responded. “Oh, you know, car racing, extreme skiing”, or something like that was the response. “Uh, no” was the answer of course.

Our insurance agent unknowingly planted a seed that day.  A few weeks later I looked over at David as we sat at a red light and reminded him of that conversation then told him, “Ever since Matt mentioned car racing I’ve had this desire to get behind the wheel and drive really fast.”  David just laughed at me and I laughed too.  Wouldn’t it be ironic to have your insurance agent inadvertently encourage his customer to participate in behavior he was, in effect, insuring against?

You’d think, being involved in a double-fatality car accident would put a bit of a damper on the desire to drive really fast, but you’d be wrong.  For one thing, I really didn’t see the accident happening.  I was reading and completely unaware of what would befall us until happened.  Now, an actual wreck, that would probably toss me into a full-blown PTSD attack, not the driving itself.

hawk1Every time I buckle up and point my car down Highway 102 toward JBU, I anticipate flying down the twisting, turning two lane stretch between Centerton and Gentry with the radio cranked up – loud!

I virtually itch with the desire to push my foot to the floorboard of my souped-up Toyota Camary (sarcasm alert) and fly down that twisting, turning highway.

But shoot, I’ve always been a practical kind of girl.  In fact I think I was born with a forty year-old brain, and practicality constrains every latent, adrenaline-fueled, fantasy that flashes through my mid-life crisis driven soul, leaving me regretting the fact that I missed out on my opportunity to experience and enjoy a misspent youth! Oh to rewind the clock! What different choices might I have made if I had known this day was coming?

I wish I had the opportunity to participate in martial arts, to spend copious amounts of time on the gun range, to be trained to race cars, drive defensively, to zip line and hang glide and even jump from a parachute packed plane – No Adult Diapers Required!

I’d choose to embrace adrenaline and eschew safety. I’d choose to live wide open, if I could do it all again.  And I’d also choose David and Cole, Bethany, Gracen and Katie all over again – heartbreak be dammed!  For there is not one thing I’d choose to undo about my family in order to avoid the assault of death and disease in my life, because all the adventure and excitement risky business promises in no way compares to the riches of human relationships.  I may regret missed adventures but the only regret of any consequence I have in regards to my family is a lack of health and a lack of time – neither of which I ever had any personal control over.

54e17e2b4343e-image1So, as much as I might itch to fly down highway 102, leaning into the curves and blasting down the straightaways, it’s highly unlikely that I will ever actually cut loose and do it.  (Well, not the way I’d really like to anyway).  I still have important relationships here to enjoy – and no amount of adventure and adrenaline is worth the price some other unsuspecting family might have to pay should I selfishly choose to ignore the risk to other drivers on the road one day and open that throttle up and fly.

Nope – that kind of excitement and adventure is what fiction is all about.  So I’ll just have to charge up the ereader or raid the Redbox and live vicariously through the characters within and hope that, as Randy Alcorn seems to believe, the new Heaven is a redeemed earth, and I’ll have all of eternity to bring glory to my Savior by fully enjoying His unblemished creation.  That’s my story and I’m sticking to it!

 
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Posted by on February 13, 2016 in Faith, Good Fun

 

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An inside look at Muscular Dystrophy. . .

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I too see and appreciate the tender mercies yet have not made peace with what might lie ahead as we live with ARSACS, a different form of Muscular Dystrophy than Mitchell’s family endured.

I am not simply grieving what has been lost already, but what is yet to come. Maybe, this video will help others to understand why I am so resistant to moving forward. I’m still coming to terms with the fact that everyday following December 26, 2013, has been and will be the best of times for our family, in spite of what physical skill may be surrendered to ARSACS on any given day.

Please, take a minute and watch this short video by clicking on the link below highlighted in red.

WHEN THE LIGHTS GO OUT, AS THEY SURELY WILL

So, I try to live in the present. Sometimes life demands that I look further down the road, and sometimes I’m unable to prevent my mind from floating forward to the new eventualities, but I desperately try to control my thoughts, to avoid “kicking at the pricks” as Christ informed Paul he was doing on the road to Damascus.

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Please try to understand that my hope lies in eternal things and avoid trying to help me have hope for things of this world. I’m not trying to be negative, I’m just grieving what’s been lost while simultaneously grieving what’s yet to come.  It’s known as Anticipatory Grief.

I know there are not a lot of people who have walked in my shoes and have no idea what it’s like to live in a continuous grief cycle and therefore, don’t have any concept of how I think. I know that experience is the most effective way to develop empathy but before you try to remind me of my blessings please imagine living with my everyday reality.

1908247_836591986370464_1217962212_nI didn’t lose a son and two daughters and begin picking up the pieces to move into a hopeful future. I live with the knowledge that I will always be picking up broken pieces and there is no way to repair the pieces that have been falling since MD entered our lives.

Happiness may be fleeting and driven by circumstances, but joy and happiness are not equivalent. Joy is the light of the Holy Spirit’s indwelling. Unless we are consciously trying to hide it, joy seeps to the surface. It’s intangible – a silent, more subtle and substantial quality than happiness which flaunts it’s presence in spontaneous and short-lived smiles, laughter and excitement. Joy lingers, in fact it resides, within even the most wounded heart because it is the fruit of the Spirit.

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Do not jump to the conclusion that families who cope with special needs, life-threatening or progressive disease live without joy and are unaware of their blessings. You might be surprised to hear them voice their deep gratitude over the smallest of accomplishments and simplest of kindnesses.

Living with great needs has a way of opening your eyes to the smallest of blessings, but it doesn’t anesthetize the painful realities of life. It’s like a downpour abating just long enough to load your daughter into the car and her wheelchair into the trunk. You are grateful, thrilled even, that you aren’t soaking wet even knowing you will still have to place the daughter of your heart back into that wheelchair when you arrive at your destination. You also know the rain might not abate when you arrive and you may still end up soaking wet. In spite of that you are still thankful that you stayed dry for the time being.

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I want others to understand that none of this is easy, there are no simple answers, and I will not always be able to tie up my messy life and emotions with a Biblical bow that makes everyone, myself included, feel better.

If you haven’t already; watch the video, read Mitchell’s father’s Facebook posts. You will find a godly man who, two plus years later continues to deal with sorrow. He’s also aware there will be more darkness to navigate down the road. He ties things up with a Biblical bow better than I do; so you will appreciate his lessons and feel comfortable hearing them too. He has much of worth to share.

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Pity Party or Grief – That’s the Question

What exactly is a Pity Party?  That’s a question I have asked myself over and over again. In what other way will I know if I am throwing one of epic proportions?

Maybe I would have been better served to ask myself why I’d ever entertain the idea that my grief, in any way, could be construed as a pity party.  But I think I know the answer to that question.  It’s because a few brave souls have gently suggested such a thing.  Might you be simply enjoying a pity party, Janet?

Okay, as offensive as I find that question, I’ve chosen to take time to seriously consider it. Have I crossed the line from grieving to donning sackcloth and ashes in an outward display of grief for the purpose of inciting others to feel sorry for me?  In order to determine the answer to that question I first need to figure out the difference between grief and a pity party.  So I googled my way to a reasonable definition for both terms which you will find below.  If you get the chance though you really should take the time to see the Urban Dictionary’s top definition for a pity party.  It’s a nice and fairly accurate tongue-in-cheek definition that simply proved to be a bit lengthy for my purposes.

The Oxford Dictionaries defines a pity party as:

“An instance of indulging in self-pity or eliciting pity from other people.”

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And medicinenet.com defines grief as:

“The normal process of reacting to a loss. The loss may be physical (such as a death), social (such as divorce), or occupational (such as a job). Emotional reactions of grief can include anger, guilt, anxiety, sadness, and despair. Physical reactions of grief can include sleeping problems, changes in appetite, physical problems, or illness.”

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Grief is about loss.  It’s about the intrinsic value of life, hopes, dreams and expectations. But today, I want to talk about life.

In my personal opinion, the idea that any single life is less valuable than another ultimately devalues all life.

We live in a culture that has become unconsciously and yet increasingly ambivalent toward the value of human life.  Why?  Maybe because abortion in the form of the Morning After Pill or the prevalence of far more invasive procedures combined with the recent Death with Dignity legislation is to blame.  Abortion and euthanasia have rendered life valuable primarily in terms of cost and convenience.  The subtle message that invades our hearts is that only the wanted, and the healthy have value in this world.  But what happens when the wanted become unwanted? Unmanageable? Inconvenient? Unhealthy? Too costly?  What then?

At the same time we live in a fast moving society.  The technology age with the advent of microwaves to microprocessors, has sped our ability to acquire, use and process data and shorten the waiting period for a vast number of things.  We are impatient people.  We want what we want now and fully anticipate the ability to achieve success or resolve problems post haste!  Now!  Yesterday!

IMG_4836But some things in life cannot be rushed.  Some things simply take as long as they take, which doesn’t seem to prevent us from feeling frustrated with the wait or pushing ourselves and others to shorten the amount of time to accomplish a given task. And that impatience has spilled over into every area of our lives including the expression of grief. A new definition can be added to Oxford Dictionaries definition of a pity party. It reads something like this: A term applied to an individual’s behavior when society and has lost patience with someone who has suffered a loss of grievous proportions.

The normal response to loss has been reduced to indulgent self-pity.  No, you say, that can’t be true.  But how often have you heard the grief stricken encouraged to “move forward” or “let it go”?

The difference between self-pity and grief is that self-pity is largely a matter of choice. And frankly, I don’t want your pity, and I haven’t met many bereaved parents who do. The bereaved want and need understanding, their feelings validated and they want and need affirmation – not pity. But let me be very clear on this:  Those who mourn can and will suppress their grief for a variety of reasons. Societal pressure, holding it together for spouses and children, caring for those who may be injured or aging, or because they need help processing it and are afraid or unwilling to seek counseling.  And while it might appear from the outside that this individual has completed the mourning process that is patently untrue. Unresolved grief lies in wait. Unresolved grief creates new problems. Unresolved grief is not healing, it’s harmful to oneself and to other relationships. Unresolved grief often leaves an individual incapable of talking about their loss, wounded yet diligently clinging to a positive perspective, and spiritually inconsolable or amputated for lack of a better way to describe that area of the heart that is walled off and God is refused entry.

Mourning the loss of a significant loved one should never, ever be confused with a pity party.  Grief is a normal and healthy response that testifies to the innate value of every life.  That is why parents grieve following a miscarriage, stillbirth or infant death.  All lives matter regardless of their duration or perceived contribution to this world.  All lives have value.

 
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Posted by on February 11, 2016 in Faith, Grief

 

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