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Category Archives: Grief

Record my Misery

Record my Misery

Record my misery . . . List my tears on your scroll. Psalm 56:8

Today marks a year and a half since Bethany and Katie were killed by the reckless actions of an unlicensed driver (a three-time offender by the age 19).

I wonder if Troy Robins, and the parents who failed to teach him to respect and obey the law, feel any responsibility at all? If Troy Robins feels any remorse for the destruction he’s wrought in our lives? I certainly haven’t received even a cursory apology.

I wonder if he suffers flashbacks from that day? Are his dreams filled with the hysterical sound of my voice as I discovered my daughters? Is he haunted by the image of Bethany’s broken neck, of Katie’s slashed forehead of the sound of Gracen wheezing as she struggled for breath with a collapsed lung? Does the image of the yellow plastic sheeting quickly draped over Bethany’s body remind him, like it does me, of the oversized trash bags my mother-in-law buys from the Boy Scouts annually. Can he imagine the message that image communicates to a Mother?

Do the sounds of sirens and flashing lights make him want to curl up in a ball and cover his ears to block out the sounds and sights? Do they make his heart race?

Does he wake up every morning dreading the day ahead and stay up late every night trying to stave off the dawning of the next day?

Does he find menial tasks, cleaning house, making meals, paying bills overwhelming like I do?

Does he have to respond to polite inquiries as to how he is doing? Does he feel like a bug under a microscope with everyone personally judging his actions based upon their own preconceived ideas?

Does he feel smug because he escaped prosecution for two felonies and paid less than $1,000 in fines while we paid tens of thousands of dollars in medical bills?

Does he feel guilty for stealing Gracen’s last days of independent mobility or prideful for his own lack of personal injuries? Is he still driving illegally today putting other law abiding citizens at risk?

Did the events of December 26, 2013, change him in any way, shape or form? They changed me. They haunt me. They traumatized me. They changed David and Gracen in tangible and intangible ways.

The images flash through my mind – sights and sounds from the roadside. Police, firefighters, paramedics, a neck brace, a backboard, the inside of the ambulance as it pulls away separating me from my sole surviving daughter.

Blue sky, bumpy ride, greeting and condolences from the charge nurse. WHERE IS MY DAUGHTER? IS SHE STILL ALIVE? Nurses, CT scan, chaplain. WHERE IS MY DAUGHTER? IS SHE STILL ALIVE? WHERE IS DAVID? WHERE IS O’RANE? HOW DO I REACH HIS FAMILY? WHERE ARE BETHANY AND KATIE? Doctors, nurses, prayer, stitches. Oversized scrubs.

Hospital waiting room. Bethany’s best friend and family. Our pastor, his wife, church friends, my in-laws. OH, NO, GRACEN IS ALONE! OH, GOD, WILL SHE DIE ALONE? Relief, Gracen is not alone. Family has arrived in Joplin.

Informing in-laws, family, Bethany’s boyfriend overseas . . . and Gracen – twice.

Chauffeured to Joplin cloaked in darkness. Squeezing David’s hand and whispering, “They knew they were loved.” Talking to my Dad. Emailing my three closest friends.

Waiting, waiting, waiting. Gracen still in surgery. The hush of the ICU. Gracen covered in bruises, stitches, staples, a neck collar, attached to a ventilator, an external fixator protruding from her leg, IV pushing fluids, antibiotics, pain killers, blood pressure cuff puffing up, tightening, releasing, chest tube, broken pieces of glass glistening in her hair, her life still in the balance. Beeps and blips, whooshing sounds. Pale skin, cold hands, no movement. David in a wheelchair, dry heaving. Alone with Gracen.

Family and friends coming and going day after day, night after night.

Media reports, pictures on TV, in print, phone calls, text messages, Facebook posts. . .

Pastor, funeral home director, decisions, caskets, flowers, music, Bible verses, pictures.

Following the ambulance to UAMS New Years Eve and into the wee hours of New Years Day. A quick stop at home. Sorting through debris left by the roadside, shattered electronics, cherished stuffed animals hugged close to my chest, inhaling Katie’s individual scent, never used or worn Christmas gifts.

Leaving Gracen behind, family and friends standing in line, hugs and tears, funeral, cemetery, dinner, long, dark drive back to Gracen.

Doctors, nurses, low lights, bright lights, anger, fear, pain, hallucinations. Latex allergy, surgery, more surgery, x-rays, oxygen, chest tube out, chest tube in, lost weight, bedpans, stitches and staples removed, leg immobilizer, wrist splint. Traumatic Brain Injury?

Meals, motel rooms, sharing daylight hours, trading nights between hospital and motel.

Bright blue sky, ambulance tail lights. Home. Gutted doorways, exposed foundation, hospital bed, belly shots, sponge baths, care aides, home health nurses, OT/PT, pressure sores and debridement.

Gracen passed out, incoherent, 911, firefighter, paramedics, ambulance, ER again.

Attorney calls, no charges filed, accident report, reconstruction report. No charges filed. Prosecutor’s re-election campaign. Legal research, uncommunicative, ineffective prosecutor. No charges filed. Coroner’s Inquest. Misdemeanor charges filed.

Hospital bills, doctors bills, bills from the radiologist, the ambulance companies, the life flight service – oh my word, $35,000 for the helicopter. Bills, bills, bills. Late notices. Calls from creditors, collection threats. Collection letters, collection calls. What happened to our once stellar credit rating? I don’t even want to know – to try restore our good name.

Crosses on the roadside, markers on graves. Court room. There he is, the man-child who killed our daughters. He, and his mother, immediately turn away. Why am I not surprised? A shocking not guilty plea. We have to come back to court again. A defiant guilty plea. A slap on the wrist days after Christmas a full year after the collision.

Constantly churning thoughts, injustice, politics. Beliefs and faith challenged, relationships stretched, strained, damaged. Hard truths, platitudes, admonitions. Lack of forgiveness? Vengeance or justice demanded? Pity party? Choose joy. Praise God. It will be OK. God is in control. Was not God in control that day? Am I supposed to feel that what happened was OK? Is the measure of my faith dependent upon my ability to embrace my daughter’s deaths? Is worship and counting this trial joy for the spiritual maturity it will develop suppose to blunt or even erase the pain?

Tension, anxiety, restlessness, pharmaceuticals. Relief?

Round and round and round we go – fear and fatigue, shock and resignation. Sorrow. Lost hopes, lost dreams, unfulfilled expectations. No graduations, engagements or weddings for Bethany and Katie. Lost grandchildren. Lost identity. Lost purpose. Lost future.

How are you? Fine (Freakin’ Insane Needing Extraction). How are things? Good (Going On Only Downward). Oh, yes, I’m fine, things are good. We have new floors, new doorways, new paint – empty bedrooms. How could we be anything but grateful?

What has Troy Robins lost? We’ve paid the price for his sins. Did it cost him anything other than a few measly dollars pulled from his parents pockets?

On and on the questions race as the images flash. So very tired. So very disappointed. So very broken. So very lost. Head pounding, heart flayed open longing to be validated instead of feeling criticized and being placated. Simultaneously thankful for God’s provision, for eyes unveiled to see His care amidst the destruction. Does anyone realize sorrow and gratitude are not mutually exclusive?

When I long to flee His presence (because His will supersedes my dreams and plans), the Psalmist reminds me there is no place I can go where He is not – a highly frustrating consolation. When I feel forsaken, red letters remind me of the comforter who quietly resides within – forever present – never alone. When Satan taunts and condemns, I feebly try to strap on the full armor of God.

Faith built in the past is the foundation upon which I huddle in a fetal position as the storm continues to rage upon me. I may be beaten and battered, broken, lost and even despairing, but there is a firm foundation beneath. While I no longer believe I will not suffer more hurt and loss in this life, I remain fully confident of the only hope I am truly promised – my eternal future with the Savior who paid for my sins.

While some may accuse me of throwing a first class pity party, I choose to believe that in sharing Christ’s sufferings I am glorying in Him (see Romans 8:17).

Do we not rehearse Christ’s sufferings every spring? Do you think Christ’s spiritual and emotional sufferings paled in comparison to His physical sufferings? Do we downplay or elevate the fact that Christ endured betrayal and abandonment by His friends and disciples for the joy set before Him? That He took our sin and shame upon Himself for our eternal good? Does your heart not break as you picture Him crying out in desperation and despair from the cross, “My God, my God, why hast thou forsaken me?” Is not Good Friday about counting the cost? Is it wrong for this broken mother to do the same?

(Facebook Post 6/26/15)

 
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Posted by on October 22, 2015 in Faith, Grief

 

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On Life Cut Short

letthechildrencomePersonal safety is largely an illusion we wrap ourselves in and are comforted by until the moment when it is either threatened or simply snatched from our feebly grasping hands. There is but one true form of personal safety and it pertains not to the body – only to the soul.

There are those who walk among us who know this truth far too well. Their hearts have been seared by this red hot truth and they are forever changed. They know firsthand that the multitude of verses about safety in the Bible are not promises of physical safety here on earth but instead refer to the absolute safety of the soul for those who have received the free gift of salvation and become sons and daughters of the king through adoption. This is the hope of the believer – this is their confidence – and this is their terror as well.   The veil has been torn from their eyes and they see all too clearly that the ones they love most in this world are not promised to remain theirs for the duration of their time traveling this pilgrim pathway.

There are in fact scriptures we prefer not to look at too closely. Verses that reveal the sin we either prefer to pretend doesn’t exist or feel is impossible to gain victory over rank high on that list. But also there are those that simply reveal truths we fear.

Psalm 139:13-16 contains one such truth hidden amongst David’s proclamation of God’s omnipresence and omniscience. There it silently lies speaking both a comforting and yet disturbing truth to those with ears to hear.

The passage is a familiar one for the average Christian and is often quoted in defense of the sanctity of human life. It begins,

13 For You formed my inward parts;
You wove me in my mother’s womb.

14 I will give thanks to You,
for I am fearfully and wonderfully made;
Wonderful are Your works,
And my soul knows it very well.

15 My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the depths of the earth;”

Then along comes verse 16 . . .

16 “Your eyes have seen my unformed substance;
And in Your book were all written
The days that were ordained for me,
When as yet there was not one of them.”

It’s a profound truth – an awesome truth – one we should fully embrace.

“. . . And in Your book were all written, The days that were ordained for me, When as yet there was not one of them”.

Verse 16 is one we should fully examine and meditate on; not simply breeze by as we strive to reach the end of the chapter. It’s far from insignificant; it holds vital truths of consequence to followers of Christ and lovers of the Lord God Almighty.

This passage tells us that every individual created by the hand of God was ordained a set number of days before they were ever born into this world.

According to dictionary.com the word ordain means “to invest with ministerial or sacerdotal functions; confer holy orders upon.” This definition holds a world of meaning to a Christian because it clearly states a truth we hold dear and also dovetails nicely with other scriptures related to sanctification and gifts for ministerial purposes.

When the Bible tells us that our days have been ordained it is telling us that our days have been numbered but it is also speaking of a broader truth. The scriptures are telling us that every single human being ever formed in the womb was appointed a sacred purpose – an assigned ministry (service for God) – every human being was, in fact, given holy orders.

Consider for a moment that every life was planned and assigned a holy purpose in light of 2 Peter 3:9.

“The Lord isn’t slow to do what he promised, as some people think. Rather, he is patient for your sake. He doesn’t want to destroy anyone but wants all people to have an opportunity to turn to him and change the way they think and act.” (GOD’S WORD Translation)

This verse tells us that in spite of our preordained life’s purpose, God patiently waits for us to accept or reject our holy orders and thereby fulfill our life’s ultimate purpose within the predetermined number of days appointed for our lives.

When a young father, a child, or even a middle-aged woman dies before the average lifespan has been fulfilled, it is not at all uncommon to hear their life referred to as one “cut short”. This, however, is a worldly concept, not a heavenly one. Every human life, regardless of its length of days, is lived to it’s fullest ordained measure. That can be both a painful and a comforting truth but as Dr. Adrian Rogers said, “It’s better to speak truth that hurts and then helps than falsehood that comforts and then kills.”

Bethany and Katie lived every minute, every second of life appointed for them. The moment God chose to create Bethany and Katie and lovingly and painstakingly planned every single detail of their individual and unique appearances and personalities, He also ordained the number of their days. Their lives were not cut short. They were fully realized and by God’s grace, they fulfilled His ultimate holy purpose within their appointed days.

 
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Posted by on October 22, 2015 in Faith, Grief

 

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Seduction – Dark Orchid No. 1

Seduction – Dark Orchid No. 1

Dark Orchid No. 1, better known as Victoria’s Secret Seduction, was the fragrance Bethany requested for her birthday. She wanted the gift pack that included perfume, body wash, lotion and a candle and that’s what she got. I don’t know where the perfume, lotion, and candle got to, maybe she used them all up, but a small tube of body wash remains and has been residing in a cabinet in the girl’s bathroom for the last year. Every once in awhile, I reach up and pull it down off the shelf, pop that top and breathe in her fragrance, but I’ve never before dared use it.

A week or two ago, I grabbed that small black tube off the shelf and moved it to the ledge around the deep tub in my master bathroom. And today, well today, I moved that small tube from the tub to the shower.

When I got in the shower this morning, however, I grabbed my standard bar of bath soap to wash away the dirt from the day before. I washed my hair with the shampoo that currently sits on the shelf – lathered, rinsed, repeated all before reaching for that small tube of bath gel, flipping it’s pop-top lid, closing my eyes and slowly inhaling.

There I stood breathing in the aroma of my oldest daughter. It’s like a precious ointment, one you use sparingly, to make it last, and that’s exactly what I did. Squeezing out a small dot onto one of those shower poofs before lathering it all over my skin. Squeezing out another drop, closing my eyes and lathering it into my hair as tears fell and my heart heaved desperate longing for the two daughters I will never again embrace this side of Heaven.

The fragrance of one, the image of the other happily sitting at her older sister’s feet, face tilted up and filled with joy just to be in her presence, just to have her home for a few fleeting days, danced behind my closed eyelids.

I breathe them in, breathe them in, breathe them in, all the while aware it’s only an illusion of their presence and yet clinging to this olfactory memory and the images it unveils, as if I were able to hold both Bethany and Katie’s hands, fingers entwined with mine.

Today, I will repeatedly inhale the soft fragrance of love and laughter, tears, and anger, hurts, and happiness over and over and tomorrow I’ll wake to find Bethany’s scent has drifted away and feel the excruciating loss again just as Bethany and Katie slipped beyond my reach a little over a year ago. But today, today, I will breathe them in . . .

 
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Posted by on October 22, 2015 in Grief

 

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Bridges’ Five Faces of Christian Pain

Bridges’ Five Faces of Christian Pain

(Originally published on Facebook 12/11/14)

I came across this link today largely by accident:
http://http://www.christianquotes.info/images/jerry-bridges-quote-5-faces-christian-pain/
It was part of those add on stories that follow something else you link to and read. Anyway, I think it is interesting and has merit and might help someone out there.

I do have to say that I have a concern about the way Bridges presents some examples in the section entitled “You Don’t Have to Become Your Pain”. He says, “Think of it this way. If you hammer a few nails in your life, you don’t automatically become a carpenter. Similarly, if you committed adultery, it doesn’t necessarily mean you are an adulterer.”

I think the point Jerry Bridges is trying to make is that when a Christian repents, meaning they turn away from their sin and remove that behavior from their lifestyle going forward, that sin is no longer an adjective that defines their life and character. God forgives and separates that sin from the sinner.

I point this out because I know there are Christians who will stop reading right there and miss some good stuff that follows. I particularly like this line: “The mark of a mature Christian is to be at peace with the exact form of the blessing that God has in store for you.” Ah, to be that mature . . . accepting your destiny is vastly different from embracing it, finding contentment in it, and making peace with it. I can only hope that the Holy Spirit will complete that work in my life – because it would be His work in my heart, not something I learned and worked to achieve on my own – that’s for sure!

Anyway, I hope this speaks to some hurting soul out there and blesses you on the midst of whatever pain you are currently struggling to deal with!

 
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Posted by on October 22, 2015 in Faith, Grief, Links

 

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I Don’t Have to Say Goodbye!

(Originally published on Facebook 12/5/14)

Love this song – it fills a spot in this grieving heart. This morning I happened to reread a journal entry I wrote July 10th. I was in a contemplative mood, I guess, because I wrote, “I get the impression that within the Christian community we believe the presence of peace equates to the absence of pain and sorrow. True peace, as I understand it, is the absence of fear – not the absence of pain, sorrow, anger, frustration, and a multitude of other emotions.” I can only think of one place in my Bible where God told someone not to mourn – Ezekiel 24: 15-27 – and as in everything else God does, there was a purpose. Ezekiel’s failure to grieve in the outward manner that was typical of the day, served as a powerful sign to the House of Israel. His unexpected, and obedient behavior ensured the prophecy God had given would be heard and remembered.

I thought I’d include the lyrics here. Words are important to me, Getting them right, matters. I think I’d change “I will shoulder the blame” to “I will shoulder the pain”, but then no one asked me!

I also added a few more comments after the lyrics – if you’ve managed to read this far, you might as well read those too!

Lyrics:

Sometimes your world just ends
It changes everything you’ve been
And all that’s left to be
Is empty, broken, lonely, hoping
I’m supposed to be strong
I’m supposed to find a way to carry on
And I don’t wanna feel better
And I don’t wanna not remember,
I will always see your face
In the shadows of this haunted place
I will laugh, I will cry, shake my fist at the sky
But I will not say goodbye
They keep saying time will heal
But the pain just gets more real
The sun comes up each day
Finds me waiting, fading, hating, praying,
If I can keep on holding on
Maybe I can keep my heart from knowing that you’re gone
And I don’t wanna feel better
I don’t wanna not remember
I will always see your face
In the shadows of this haunted place
I will laugh, I will cry, shake my fist at the sky
But I will not say goodbye
I will curse, I will pray, I will re-live everyday
I will show through the blame
I’ll shout out your name
I will laugh, I will cry, shake my fist at the sky
But I will not say
Will not say goodbye
I will not say goodbye
I will not say…

It’s true, sometimes I don’t want to feel better – but, not all the time. It is also a comfort to know that I don’t have to say good-bye. As a believer in Christ, in spite of pain in the loss, I Do Not Grieve As One Without Hope! Therefore, See you soon is far more accurate than good-bye or as the ever bouncy Tigger of Winnie the Pooh fame (the first known individ . . . er, cartoon character, known to use “chat speak” in everyday conversation) was known to say, TTFN – Ta ta for now!

 
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Posted by on October 22, 2015 in Faith, Grief, Links

 

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Rest Ministries – Needing & Accepting Help

restministries

http://restministries.com/2014/08/difficult-need-accept-help/

Needing help is definitely humbling and yet it’s greatest blessing is the opening of spiritual eyes to see the nail scarred hands that prompted those around you to meet needs, and extend kindness and comfort that reaches far beyond the gift offered or act of service rendered. Brings to mind Psalm 8:4, “What is man, that thou art mindful of him? and the son of man, that thou visitest him?” Beyond all human comprehension somehow His response has been a sincere and quiet, “Mine. The apple of My eye.”

 
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Posted by on October 22, 2015 in Chronic Illness, Faith, Grief, Links

 

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Johnny Shelton – America’s Got Talent

(Facebook Post 5/28/15)

An awesome performance by a grieving father/songwriter. I watched with baited breath just hoping the song was as awesome as his love for his son – and it was – it definitely was!!!

 
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Posted by on October 22, 2015 in Grief, Links, Music

 

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Father’s Day

(Facebook Post 6/21/15)

For David on yet another Father’s Day filled with joy and longing. You are an awesome Dad! Happy Birthday to Cole who has never been and will never be forgotten – you are loved and missed. We are looking forward with great anticipation to the day the Lord and your sisters will introduce us to our son. And for the many fathers out there who experience the repeated and painful losses of anticipated moments of fatherhood – who often stand on the sidelines celebrating lost moments with joy, a touch of sorrow and a surprising lack of bitterness as friends, family and strangers enjoy them firsthand. You are all a unique kind of brave.

http://stillstandingmag.com/2015/06/losses-fathers-day/

 
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Posted by on October 22, 2015 in Grief, Links

 

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Spiritually Wounded After Loss | Wild Feathers Wellness

photo-1439902315629-cd882022cea0-600x926

Last weekend we took a little family road trip, and some things just happen in car rides. Who can explain it? Maybe it is the absence of distractions, presence of intimate spacing and of course, time. I love road trips for this reason.

On the way home, I found myself in a full-blown meltdown in conversation with my husband. It wasn’t what he was saying, it’s what I wasn’t saying. It was what I was afraid of admitting. How far I had drifted. How my heart had grown cold, and nobody knew it, not really. I convinced myself since I had found “happy” again, my kids were healthy, and I wasn’t falling apart every week; things were okay. I was okay. But being “okay” can have a thousand different definitions. Grieving people know that best, I think.

(Click on the link in red below to read the full article.)

http://http://www.wildfeatherswellness.com/spiritually-wounded-after-loss/

Comments to the above article from my Facebook post 9/9/15:

Ah yes, the spiritual wounds lurking beneath or hiding among the deep grief, sorrow and pain of loss. I’m amazed this woman managed to partition out that portion of her heart whereas I have constantly wrestled with how to address reconciling my spiritual wounds and the damage done to my relationship with Christ. Psalm 139:7-12 expresses the comfort and the torment inherent in God’s constant presence well:

7 Where can I go from Your Spirit?
Or where can I flee from Your presence?

8 If I ascend to heaven, You are there;
If I make my bed in Sheol, behold, You are there.

9 If I take the wings of the dawn,
If I dwell in the remotest part of the sea,

10 Even there Your hand will lead me,
And Your right hand will lay hold of me.

11 If I say, “Surely the darkness will overwhelm me,
And the light around me will be night,

12 Even the darkness is not dark to You,
And the night is as bright as the day.
Darkness and light are alike to You.”

 
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Posted by on October 22, 2015 in Faith, Grief, Links

 

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Uncovering Unknown Issues of the Heart

(Facebook Post 7/26/15)
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I made a personal discovery today, or maybe God revealed it to me. It has left me feeling even more emotionally fragile than I was before. I discovered that I know a lot about God from an intellectual standpoint. I discovered that I know a lot of scripture, even if I can’t associate the Bible reference with most of them. But I also discovered that I don’t “feel” the most basic of Biblical truths; at least in regards to myself. What is this truth that has left me reeling? This truth I know in my head but not in my heart? This truth that staggered me to the very core of my being when I finally became aware of it? This is the truth that knock my feet out from under me: God loves you, Janet.

Now, I can’t count the number of times I’ve sat in sanctuaries and auditoriums and heard how “it’s not about emotional responses.” That we can’t always trust our feelings – which is why we rely on scripture. I certainly understand that argument on an intellectual level. I do. I get it and I’ve practiced it. When my heart’s been decimated, I’ve clung to the truth that my circumstances are not a reflection of God’s feelings toward me. I’ve held fast to the teaching that God is sovereign but that man has free will. I’ve believed that God doesn’t cause bad things to happen but that He does allow them to happen. I’ve trusted that He never leaves me, that He walks through the bad stuff with me, that He uses the bad stuff to refine my faith and conform me into the imagine of Christ and to somehow use that testimony to bring the lost to salvation; that I’m a tool in the Master’s hand used to bring Him glory.

But somewhere along the way my understanding has become warped. All the losses and the role disease has played in our family is all intertwined with my faith. I’m messed up. If the purpose of my life is to bring glory to God and if God allows me to be hurt over and over solely for the purpose of conforming me into Christ’s image and to bring Him glory through obedience, service and evangelism, without any regard for my emotional and psychological well-being, then we aren’t describing a God of love, we are describing a self-serving or an ego-maniacal God and that, of course, is in complete opposition to scripture.

So, I know I’ve gotten it wrong somewhere along the way. Maybe I simply accepted the easiest answer to explain God’s sovereignty because I needed an explanation, a purpose, when no real answer could be found. God rarely answers the why question, so I found one I could attribute to an overall grand design. But I can no longer cling to this idea that all this pain is for my good or that it’s justified for another’s salvation. I need to “feel” God’s love for me, not just know He loves me in my head. Otherwise, I’m left feeling as if I’m expendable for the benefit of others. That God loves others more than He loves me. That I’m little more than a means to an end and that the pain it all causes me is not of concern to God. If His purpose is simply to conform me or lead the lost to Christ, then I don’t feel individually cherished or worthy, or precious in His sight. I feel used – that I’m being conformed into a Christian Stepford Wife. I think that is why the idea that some ministry might rise from the ashes of Bethany and Katie’s deaths, from Gracen’s injuries and progressive disease, has been so repulsive to me.

The logical part of my being recognizes that God loves me but I can’t reconcile my theology and my reality. I can’t feel it in my heart – I need to experience His love for myself instead of simply reading about it in the Bible. And I don’t know how to go about it – I’m not even sure there is anything I can do about it. I need the Holy Spirit to do it – to change my heart so that I can experience the depth, width, height and breadth of His love.

I can’t even describe how broken I am, how tired I feel. I’ve got no words to enable another to understand the prison that my brain has become. The ache, the hollowness left in my heart – the utter and complete devastation not just for what has already happened but for what is yet to come. I don’t know how many more blows I can take, because I’m not fending them off, I’m taking them on the chin.

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I’m worried about sending Gracen off to college but I’ve come to realize it is something we both need. She needs to experience it and I want her to as well. I feel so selfish saying this, but I need a break – Not from Gracen! – I need a break from the constant reminders of the collision. From the visceral response I have to seeing or hearing that wheelchair coming down the hall. From the things I now do for Gracen that she used to do for herself. It’s about the tasks and lost health resulting from her disease and the wreck – not Gracen, herself. It’s about all the unpleasant changes that have happened to the child I love more than life itself endlessly assaulting my heart and mind.

It’s relentless. I just can’t escape it so that I can somehow work it out and live with it. Not just living without bitterness but actually continuing to survive the emotional, spiritual and physical destruction. Oh to be able to escape, to flee from it all if not permanently then temporarily so that I can catch my breath and get my feet back under me. So that I can quiet the constantly striving voices in my mind. So I can find some peace. I’m so desperate for a little bit of peace!

Realizing that I struggle with one of the foundational truths of Christianity may have come as a shock to me, but it certainly wasn’t to God and dare I say that I’m not alone. My struggle is little more than an age old reflection of Psalm 42:1, “As the deer pants for the water brooks, so my soul pants for You, O God.” Our human hearts long to know and experience intimacy with God. It explains our existence and gives us purpose. Intimacy with God ultimately reveals who we really are to ourselves. I’m more than a product of nature and nurture and life experience. According to the Bible I was designed with intention. I think I know myself so well, but the truth is that God knows me far better because I am His unique creation. So it stands to reason that in order to know myself better, I have to draw closer to my creator.

I’m missing the emotional component that creates a personal connection with God. I need to feel as if there is some distinct quality about me personally that allows me to have a relationship with Him that He has with no other person spanning all of creation. I need to feel as if I’m not a Christian Stepford Wife, that I’m not easily expendable for others but that while in the process of conforming me into Christ’s image and leading the lost to salvation that anything God allows to happen in my life is only allowed out of love for me individually, not at me expense, but only for the love of Janet. I know that’s true; it’s scriptural, but I need that truth to permeate my heart as well as my mind.

I’m hoping the Holy Spirit will brake down the self-protective walls I’ve built within my own heart when God didn’t behave as I expected Him to. The walls of justification I created to anesthetize the pain that came from feeling disappointed and even betrayed by the God I thought I knew. I need those walls to come down so that I can clearly see, experience and feel God’s love the way He always intended. I need more of God and I need Him to provide it because only He can. So, I continue to wait on the Lord for His revelation of Himself, at the time I’m most ready and able to receive Him. When He has been able to quiet me with His love, so that I can hear His still small voice and I can comprehend the height, width, depth, and breadth of His love for me. Scripture promises me that that’s His desire for me so I know it’s not a vain hope. And that’s a great comfort amidst so much angst and uncertainty.

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Posted by on October 22, 2015 in Chronic Illness, Faith, Grief, Muscular Dystrophy

 

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